#cystic-fibrosis

'In danger of snatching defeat from the jaws of victory': How tension built ahead of Orkambi deal

Aug 26th 2017, 12:05 AM 11,967 13

#CYSTIC FIBROSIS
Campaign to raise money for Orla Tinsley's lung transplant care hits target

Jul 24th 2017, 4:16 PM 18,420 12

#CYSTIC FIBROSIS
'Undue fear and confusion': Read the emails Vertex sent to Department of Health about Orkambi

May 7th 2017, 6:45 AM 11,265 5

#CYSTIC FIBROSIS
'No parent wants to see their child go before them': Living day-to-day with cystic fibrosis

Apr 13th 2017, 6:07 AM 7,504 5

#65 ROSES DAY
'We are so, so happy that it's finally here': Cystic fibrosis patients celebrate deal on Orkambi

Apr 12th 2017, 6:00 AM 6,445 8

#END OF A LONG ROAD
'Life changing' cystic fibrosis drug Orkambi will be available from next month

Apr 11th 2017, 6:08 PM 27,959 34

#DEAL REACHED
'After the transplant, I looked in the mirror and my eyes weren’t yellow anymore, they were white'

Apr 3rd 2017, 6:30 AM 19,476 11

#ORGAN DONATION
'Helen didn’t have a peaceful death, she wanted to live so much'

Apr 2nd 2017, 7:00 PM 36,041 13

#ORGAN DONATION
Deal on 'miracle' cystic fibrosis drug expected in a matter of weeks

Mar 6th 2017, 1:24 PM 9,727 15

#ORKAMBI
Taoiseach told 'several children have died' waiting for Orkambi drug decision

Feb 21st 2017, 8:06 PM 17,932 54

#CYSTIC FIBROSIS
Your crash course in... Ireland's battle with Big Pharma for a 'miracle' cystic fibrosis drug

Dec 18th 2016, 7:00 AM 8,187 33

#HEALTH
Cystic Fibrosis patients being 'used as pawns' in Orkambi medication negotiations

Dec 8th 2016, 4:51 PM 7,300 24

#TOO EXPENSIVE
Vertex to re-open talks on Orkambi with HSE

Dec 7th 2016, 6:30 PM 14,046 61

#CYSTIC FIBROSIS
Drug company wants Simon Harris to intervene in row on life-changing drug Orkambi

Dec 1st 2016, 9:50 PM 20,154 37

#CYSTIC FIBROSIS
Simon Harris writes to other health ministers in bid to reduce cost of CF drug

Nov 29th 2016, 7:29 PM 10,996 32

#ORKAMBI
Opinion: 'My little boy isn't worth the cost of Orkambi'

Nov 28th 2016, 8:30 PM 18,436 77

#CYSTIC FIBROSIS
HSE drug advisor says life-changing cystic fibrosis drug is "not value for money"

Nov 28th 2016, 10:14 AM 11,591 48

#ORKAMBI
Cystic fibrosis patients 'dismayed' at decision to not fund life-changing drug

Nov 27th 2016, 3:35 PM 16,539 52

#ORKAMBI
Simon Harris wants to bring down the cost of expensive drugs by buying in bulk

Nov 14th 2016, 6:15 AM 10,408 44

#HIGH PRICES
'Orkambi saved my life, other people should get access to it'

Oct 31st 2016, 7:30 AM 17,287 24

#CYSTIC FIBROSIS
25 years of breathing through a straw - this is what it's like to live with cystic fibrosis

Sep 18th 2016, 10:30 AM 12,275 6

#OPINION
'I want to be a reliable friend. A better family member. I want to be present. I want Orkambi'

Jun 4th 2016, 10:00 PM 31,032 52

#ORKAMBI
"A travesty" - Cystic fibrosis sufferers angry over lack of funding for potentially life-changing drug

Jun 1st 2016, 8:33 PM 12,325 69

#NOT COST-EFFECTIVE
A teenager with a big wish: 'I want to be able to breathe'

Apr 7th 2016, 6:03 AM 25,586 23

#65 ROSES
Seriously ill Domenic becomes 'Iron Boy' to fight crime in Sydney

Feb 12th 2016, 8:19 AM 12,098 8

#MAKE A WISH
'I don’t think I’ve felt that tired in my life' - Irishman raises thousands after unique Dublin Marathon challenge

Oct 28th 2015, 9:30 PM 35,117 12

#HERO
This 73 year old is 'jumping out of a plane' for his 'magnificent grandson'

Sep 5th 2015, 11:15 AM 10,330 2

#HEALTH
Here's why 20 rowers are circumnavigating Ireland

Aug 12th 2015, 9:20 PM 3,298 0

#CHALLENGE
The 9 at 9: Friday

Jul 3rd 2015, 9:00 AM 12,640 4

#9 AT 9
Another €1 million needed for cystic fibrosis patients in Limerick

Apr 20th 2015, 11:00 AM 6,842 9

#STAFFING
'Dragging myself out of bed on cold mornings, I wonder if I'm mad – but it's for a good cause'

Apr 1st 2015, 1:15 PM 23,352 12

#OPINION
Happy Christmas - Robbie Keane invites child with CF to Euro 2016 qualifier

Dec 22nd 2014, 9:05 AM 8,503 14

#GOOD DEED
A Nottingham Forest player is rocking the Abel Xavier look to raise money for cystic fibrosis

Dec 20th 2014, 6:05 PM 5,405 2

#BEARD ENVY
'Helen didn't get lungs ... but we’ll make sure other people get them because of her'

Dec 1st 2014, 6:45 AM 55,719 70

#REST IN PEACE
‘Luke’s Christmas wish is that his mammy gets new lungs’

Nov 23rd 2014, 8:30 PM 27,018 28

#CYSTIC FIBROSIS
'You could have lung disease, but won't notice if your only exercise is shopping'

Sep 21st 2014, 8:15 AM 21,316 25

#AWARENESS
76-year-old woman diagnosed with cystic fibrosis is Ireland’s oldest ever case

Sep 10th 2014, 7:30 AM 19,588 6

#LATE DIAGNOSIS
Trinity scientists discover how to attack a bacteria that causes cystic fibrosis infections

Aug 8th 2014, 7:15 AM 8,191 6

#SLIMY
'The fat lady hasn't sung yet' - Honey Badger waves goodbye... for now

Jul 6th 2014, 4:57 PM 10,725 8

#MORE TO LIFE
Opinion: It's still hard to express the sadness that comes with being unable to have children

Jun 11th 2014, 7:30 PM 18,999 60

#FERTILITY