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Dublin: 1 °C Tuesday 28 January, 2020

#Biogen

# biogen - Sunday 10 March, 2019

'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on Spinraza This post contains videos

'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on

Negotiations, and clashes, over the price of Spinraza are ongoing behind the scenes.

# biogen - Thursday 28 February, 2019

'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication Spinraza This post contains videos

'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication

About 26 children with SMA, a rare muscle-wasting condition, could benefit from Spinraza.

# biogen - Saturday 7 January, 2017

'If she gets another chest infection she probably won't make it, that’s the reality'

Nellie and Lara are the only two children in Ireland with Spinal Muscular Atrophy Type 1 – an extremely rare genetic condition.

# biogen - Friday 25 July, 2014

Tom Curran: Miracle drug being withdrawn is like "kicking the crutches from underneath MS sufferers"

The drug fampridine which has a brand name Frampyra has been proven to increase the mobility of sufferers.