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Dublin: 5 °C Sunday 29 March, 2020

#cf ireland]

# cf-ireland - Saturday 4 November, 2017

'I looked death in the eyes and didn't like what I saw so I came back': Double lung transplant patient running the New York marathon

In September, he was diagnosed IPF (idiopathic pulmonary fibrosis) a rare and incurable lung condition.

# cf-ireland - Tuesday 29 November, 2016

Simon Harris writes to other health ministers in bid to reduce cost of CF drug

The Health minister wants to team up with England, Scotland, Canada and Australia.

# cf-ireland - Sunday 27 November, 2016

Cystic fibrosis patients 'dismayed' at decision to not fund life-changing drug

Simon Harris has said he has not yet received a decision from the HSE regarding Orkambi.

# cf-ireland - Monday 31 October, 2016

'Orkambi saved my life, other people should get access to it'

The drug, which costs about €160,000 per patient per year, is giving some people with cystic fibrosis a new lease of life.