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#muscular dystrophy ireland

# muscular-dystrophy-ireland - Monday 25 February, 2019

'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition

The HSE said the current price of Spinraza – more than €20 million over five years – is not cost-effective.

# muscular-dystrophy-ireland - Friday 22 February, 2019

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking Exclusive

At least five boys in Ireland have Duchenne Muscular Dystrophy, a muscle-wasting condition.

# muscular-dystrophy-ireland - Saturday 13 May, 2017

Two boys fighting for access to drug that could help them keep walking

Two boys fighting for access to drug that could help them keep walking

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

# muscular-dystrophy-ireland - Wednesday 7 September, 2016

'A treatment that can help my son is being denied, it's agonising'

Duchenne muscular dystrophy affects approximately one in 3,500 male births.

# muscular-dystrophy-ireland - Monday 7 September, 2015

'When I was born there was no hint of any disease' Duchenne Muscular Dystrophy This post contains videos

'When I was born there was no hint of any disease'

One in every 3,500 boys are affected by Caleb’s condition.