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All time
'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on
'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs'
'The system is not adequate': Government sets up new way to judge medicines for rare diseases
'If I stay in Ireland, my daughter could be slipping through my fingers'
'In danger of snatching defeat from the jaws of victory': How tension built ahead of Orkambi deal
Two boys fighting for access to drug that could help them keep walking
'I'm living proof it works': Patients with severe lung condition call for access to 'life-changing' drug
'If she gets another chest infection she probably won't make it, that’s the reality'
Cystic fibrosis patients 'dismayed' at decision to not fund life-changing drug