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Dublin: 20 °C Thursday 28 May, 2020

#Philip Watt

# philip-watt - Saturday 13 May, 2017

Two boys fighting for access to drug that could help them keep walking

Two boys fighting for access to drug that could help them keep walking

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

# philip-watt - Saturday 9 March, 2013

Jamie's joints dislocate every day but he has no access to treatment

The Rare Disease Taskforce has asked the HSE to clarify its position in relation to the Treatment Abroad Scheme that could help.

# philip-watt - Tuesday 18 December, 2012

St Vincent’s to provide two extra rooms for Cystic Fibrosis patients

Two in-patient rooms will be held in reserve for emergency CF admissions – but patients say the arrangement falls short.