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Comment #4702720 by Ruth Cullen

Ruth Cullen Jan 26th 2016, 1:30 PM #

Well done Rachel for speaking out and sharing yours and Colleen’s story. Brave little girl. Services have to be improved for children like Colleen who have this lifelong condition and need timely intervention. I agree with Rachel the staff in hospitals are amazing and do the best they can, that is not the issue, the government need to intervene and do something to support children who are in daily pain. 4 years waiting list with no OT service when a child needs it is nothing short of cruel.

I am proud to be a member of i-can (http://www.icanireland.ie/) a parent led charity that supports parents of children with JIA and other conditions like my daughters. Without the support of other parents I would never have understood all the different interventions, needles, meds, steroids etc and would be lost.

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'Needles, doctors and hospitals have been a part of Colleen’s life for as long as she remembers'

'Needles, doctors and hospitals have been a part of Colleen’s life for as long as she remembers'

Colleen’s mother commends the hospital staff for their work, but says her daughter has been left languishing on waiting lists for years.

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