Government inaction on genomics and forestry on precious peat: Latest news from Noteworthy
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Two major investigations were published over the past month thanks to your continued support.
Hospitals and universities across Ireland are collaborating with Genuity Science due to, experts say, lack of a public project or strategy.
Expert familiar with such agreements cited issues with data access, exclusivity and intellectual property.
Ireland still has a chance to take control of genomics research – if it follows this advice.
Concerns were raised in the Dáil because “public awareness of this significant proposal is very limited”.
Researchers are worried that affected patients and families will not see notices for commercially linked study.
Solicitor Simon McGarr also explains how Genomics Medicine Ireland did not meet the informed consent requirements for a Galway study.
Dr Ciara Staunton says it is “unfathomable” that the government has funded the collection of 400,000 Irish genomes, shutting them off from most researchers.