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#Selling our genes

# selling-our-genes - Sunday 1 November, 2020

Government inaction on genomics and forestry on precious peat: Latest news from Noteworthy

Two major investigations were published over the past month thanks to your continued support.

# selling-our-genes - Sunday 4 October, 2020

Selling Our Genes: Government inaction allowing private sector to take control of our DNA

Hospitals and universities across Ireland are collaborating with Genuity Science due to, experts say, lack of a public project or strategy.

Selling Our Genes: UCD agreement with for-profit DNA collection company 'restrictive'

Expert familiar with such agreements cited issues with data access, exclusivity and intellectual property.

Selling Our Genes: Government needs to keep ‘our national identity’ in public ownership

Ireland still has a chance to take control of genomics research – if it follows this advice.

# selling-our-genes - Friday 12 June, 2020

Beaumont researchers change opt-out deadline for genomics study following calls by Health Minister

Concerns were raised in the Dáil because “public awareness of this significant proposal is very limited”.

# selling-our-genes - Wednesday 29 April, 2020

Concerns over timing of opt-out 'publicity campaign' for genomics research

Researchers are worried that affected patients and families will not see notices for commercially linked study.

# selling-our-genes - Saturday 7 March, 2020

Opinion: 'We have to act now before our genetic code falls into private hands to be used for profit'

Solicitor Simon McGarr also explains how Genomics Medicine Ireland did not meet the informed consent requirements for a Galway study.

# selling-our-genes - Sunday 16 February, 2020

Opinion: Why has the State invested €70m in a private company to look at our genetic data?

Dr Ciara Staunton says it is “unfathomable” that the government has funded the collection of 400,000 Irish genomes, shutting them off from most researchers.