Advertisement
This site uses cookies to improve your experience and to provide services and advertising. By continuing to browse, you agree to the use of cookies described in our Cookies Policy. You may change your settings at any time but this may impact on the functionality of the site. To learn more see our Cookies Policy.
OK
Dublin: 10 °C Saturday 19 October, 2019

#SPINAL MUSCULAR ATROPHY

# spinal-muscular-atrophy - Wednesday 15 May, 2019

'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval

Spinal muscular atrophy weakens muscles and causes problems with movement, breathing and swallowing.

# spinal-muscular-atrophy - Saturday 7 January, 2017

'If she gets another chest infection she probably won't make it, that’s the reality'

Nellie and Lara are the only two children in Ireland with Spinal Muscular Atrophy Type 1 – an extremely rare genetic condition.