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# Spinraza

All time
'I've can't lift my arms, brush my hair, or even go to the toilet alone': Children still waiting on Spinraza drug, Dáil told
8 Jul 2020
11.5k
1
Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease
11 Jun 2019
8.7k
5
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
15 May 2019
6.3k
4
'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on
10 Mar 2019
9.3k
13
'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication
28 Feb 2019
10.4k
28
'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition
Updated 25 Feb 2019
23.5k
62
'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs'
3 Feb 2019
19.4k
17
'If she gets another chest infection she probably won't make it, that’s the reality'
7 Jan 2017
32.0k
16