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Dublin: 10 °C Wednesday 22 May, 2013

Reilly: “Priority” to offer children bilateral cochlear implants in 2014

Parents are calling on the Government to fit children with two cochlear implants as standard, instead of the current one.

Minister for Health Dr James Reilly
Minister for Health Dr James Reilly
Image: Laura Hutton/Photocall Ireland

HEALTH MINISTER JAMES Reilly has said that providing children with bilateral cochlear implants in 2014 is “a high priority” for the government.

Sinn Féin leader Gerry Adams and Fianna Fáil TD Billy Kelleher both raised the issue of cochlear implants for children in the Dáil this week.

Currently, children in Ireland who receive cochlear implants receive one, rather than two as is best practice in other countries.

Deanna Cairns, whose son Billy has an implant, is part of the Happy New Ear campaign, which is run by parents seeking to have two cochlear implants set as standard in Ireland.

Hopeful

She told TheJournal.ie that they were very pleased with the mention of their campaign in the Dáil. She said the parents are hopeful that the Minister won’t go back on anything he said, and that they are not going to back down on their campaign.

The Happy New Ear campaign met with Deputy Kelleher last week and had previously met Deputy Adams. They are hoping to hold a meeting with all of the TDs on 27 March, as they hope to “keep the pressure on”. “Until this is pushed through the door we can’t get excited,” said Cairns.

A report on the situation is due in June. “We’re definitely making good progress,” said Cairns.

Deputy Kelleher told the Health Minister he realises the budgetary position that Reilly is faced with, “but we must act if we are to allow children to reach their full potential”.

I realise that not much can be done between now and the Estimates for 2014 but at least a process could be put in place and the services could be nailed down. Then we could go ahead with the sequential implantation and simultaneous implantation for those who are born from here on.

Minister Reilly said that there are approximately 200 children in Ireland today who may be suitable for a second implant, and that the HSE is working closely with Beaumont Hospital to progress plans for both simultaneous and sequential bilateral implantation.

He said that representatives from Beaumont Hospital, HSE management and the HSE’s audiology clinical care programme have met recently to discuss a joint process to identify the options for developing and resourcing a programme of simultaneous and sequential cochlear implantation.

An important element of this process will be the development of clear clinical criteria to prioritise clients for assessment and follow-on implantation. Each child must be assessed to determine if he or she is suitable for a bilateral implant.
The development of the service will require additional resources for Beaumont Hospital. I am pleased to report that these plans will be progressed through the HSE 2014 Estimates process.

He said that “high priority” is being given to this matter and the department will have provision to undertake the bilateral implantations next year. “I do not want any child to miss out on the opportunity to have bilateral hearing and the same chances as other children,” said the Minister.

The Estimates for this year do not allow us to immediately engage in bilateral implantations, although some have been carried out. It is a priority for me to start providing them next year and we will enter into negotiations with Beaumont Hospital in this regard.

Read: “We are hopeful”: Cochlear implants campaign gets boost>

Read: “It’s a shame”: Parents appeal for funding for cochlear implants>

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Comments (22 Comments)

  • Reilly, Stop telling people what your going to do in the future and just it now!

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  • Any statement or sentence that comes out of that windbag’s mouth should be taken with a pinch of salt.

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  • Whilst I fully agree that Ming was a complete and utter tit over the penalty points system, I find it hard to understand why there are so many screams to have him resign, whilst O’Reilly continues to blunder on, one huge mistake after another, stroke politics etc and yet the calls for him to go aren’t as vocal!

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  • Do it now for gods sake! time in this case is of the essence

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  • It’s like giving someone half a cast for a broken leg.. Pointless. There’s so much talk about resources. If they had of been given it the first time then there would be no need to put them through it all over again. Surely this makes sense to give both at the same time? Medically it does and I’m sure financially it does too. There should be no waiting around to begin to prioritise this. Do it now.

    Reply
  • Pablo 14/03/13 #

    They need to implant some in their own heads. They can’t seem to hear what the people who elected them are saying.

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  • While there is a debate on whether to fund CIs immediately or not, it is important not to lose the sight of a very valuable resource: sign language: this will benefit these children enormously.

    In Sweden, medical practitioners are obliged to encourage / compel parents to learn sign language while their children are being implanted. We should adopt this approach for this country and the state should take a proactive role ensuring these children and their parents have access to sign language..

    Also, I add on a blog ‘ ‘The Best Hearing Aid Made Ever’:

    http://deafcapital.blog.com/2013/03/13/the-best-hearing-aid-ever-made/ – Enjoy!

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    • Correction: “The Best Hearing Ever Made”…

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    • Hi John Bosco, if you met the parents and children from Happy New Ear, you would see that signing and cochlear implants are not mutually exclusive. In fact, I believe that a lot more families are signing now than ever. I have met a lot of deaf people who explained, because of direction at the time, that their families never learned to sign and still can’t. Contrast this to my daughter who’s parents, siblings, grandparents, cousins, aunts, uncles, care givers and friends are all delighted to have the chance to learn. Don’t worry- we know the important thing for our kids is to communicate, not the method. We just want the very best for them.

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    • We are fully aware of ISL and the importance of it in our families. We incorporate it as best we can but at the end of the day it will be up to our children how they communicate. I myself sign to my daughter all the time however, she chooses not to sign back.

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    • Hi John Bosco, have been reading your comment all day and was not sure if I have read it right so I am just going to reply. Are you saying that parents should be Forced to teach there deaf children to learn sigh language? I believe the word “compel” means to fource? I as a deaf mother of a deaf child would be shocked at this statment. You cannot force any parent or child for that matter to learn any language never mind ISL. The state should be aware of deaf diversity. Not all deaf people choose to use ISL. Yes the word is choose. It about accepting that deaf people have a right to use different methods and pick what method they want to use. No deaf person deserves to be discriminated against and told that they must learn ISL. I hope that the state is aware that you do not need to have ISL to be deaf. Its about the right to choose whatever method works best for you and your child. For my son and I we are both Verbal deaf. But non the less we are still deaf. My son has made the choice himself that he wants to communicate orally and he works hard at it and he deserves credit and praise. He does not deserve to be put down because he does not use ISL or that his mother does not use ISL. My son will grow up to be a strong voice for the deaf community and will demand equal oppunity and equal access. He will insure that people are aware that deaf people have different needs and these needs should be respected.

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    • censored 15/03/13 #

      Some saddos believe that cochlear implants are a threat to the deaf community.

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  • PS: For inspirational stuff on this check out the Briskeby School at http://www.cipaa.net
    Particularly Inger Anita Herheims story.

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  • We could afford it this year reilly if there wasnt as many tds and councillors raping the state of funds and running off all over the world for Paddys day.Ps what happened to the 50 cent you promissed before you were elected that you would abolish off prescriptions???????Waister

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  • The Minister might ensure that those who satisfy the criteria for and require a single CI , particularly infants, get the appropriate treatment immediately. This might be better use of scarce resources rather than grandstanding about dual implants.
    Without wishing to comment on any particular case/ procedure it is my understanding that dual implants are rare in this country while being , for example, standard procedure in Norway.
    In my view, with the present resources, financial constraints and skills, the focus should be on providing as many single implants as early as possible, ideally, within the first few years of development.
    The second might follow at some future date thus ensuring that this valuable and largely successful procedure is available to all of those who experience hearing loss from birth.

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    • It is rare in this country because of funding. It is standard in other countries because it is a better way to do it. Why should a deaf person have to go through such a time consuming, life changing procedure twice? It takes years to get used to the change and they are being asked to then spend another few years getting used to another easily avoidable change. It makes no sense.

      All the tests would have to be repeated anyway so it’s hardly cost effective.

      Finally what about deaf adults? They deserve this too.

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    • Peter Gerry Adams addressed this in the Dail when he said “The big problem as the child grows is that the nerves to which the implant should be connected die if they are not being used, which means the hope of a further implant is lost. These children are in a race against time.” So I think that it is not so much a question of resources that is the issue but more the the ability to actually implant the CI successfully in the future.

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    • I understand that those who require two CI’s will have to go through the procedure twice ( eg: over a two year period ) as normally only one implant is provided at any one time, particularly in adults as one is faced with the challenge of learning a new range of sounds, in effect a new ” language”.
      When one CI is fitted it may or may not be successful. As a result of this precaution there is an option to retain the residual hearing in the other ear without a CI.
      This may be different for infants where this is not so much of an issue as the patient has less/limited aural memory hence the earlier the better.

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    • Hi Peter I take it that you dont have much experience of Implants? Just to help everyone be more aware time is nerves. By this I mean that our children’s nerves are dying off as we speak, they are not being simulated as the strongest hearing aids on the market does not work for our profoundly deaf children. Waiting is not an option. By a few years the second implant may not be as sucessful. The government have accepted in there AudiologyReview report that sooner is better yet they still did not set up a bilateral system for our children. In my own case I had the implant later in life and my sucess is not as great as my son who had one implant last year. He can hear on the phone which is something that I can only hope to acheive in time. These true examples show what happens when the nerves die off, as they will, and the implant becomes less sucessful. My son needs the second implant as do other children like him. He gets very tired very easily and is old before his time. He has no energy to run and play and to be a child because his energy goes on concentrating on hearing and listening. As he gets older and there are more demands put on him through education ect it will only get worst.

      Reply

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