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#batten's disease

# battens-disease - Thursday 26 February, 2015

'I know the current system doesn't work, I've buried two children'

Both of Tony and Mary Heffernan’s children died at the age of 5.

# battens-disease - Sunday 4 May, 2014

Family loses "superhero" second child to rare Battens Disease RIP

Family loses "superhero" second child to rare Battens Disease

Liam Heffernan died in Kerry General Hospital early this morning.

# battens-disease - Tuesday 6 August, 2013

Parents concerned over hours of HSE care for dying son

Parents concerned over hours of HSE care for dying son

Liam Heffernan is just five years old, but does not have long to live. His parents say they are looking for more help from the HSE.

# battens-disease - Wednesday 29 February, 2012

270,000 people in Ireland suffer rare health condition

An organisation representing sufferers has launched a campaign for better care for patients with unusual disorders.

# battens-disease - Monday 28 November, 2011

Little Liam receives bravery award

Three-year-old Liam Heffernan and his family are celebrating after the Kerry native won an award for bravery. Liam has Batten’s disease and underwent brain surgery in New York recently.

# battens-disease - Wednesday 17 August, 2011

Column: ‘After watching my daughter die, we had to do everything’

Tony Heffernan describes taking his three-year-old son to New York for brain surgery – and why he’d have done it himself if he knew how.

# battens-disease - Wednesday 18 May, 2011

Kerry toddler Liam Heffernan making "awesome" recovery from brain surgery in New York

Liam, 2, is the youngest person to ever receive the pioneering treatment which aims to counter the rare neurological disorder he suffers from, Batten’s Disease.

# battens-disease - Wednesday 4 May, 2011

Irish boy, 2, 'recovering well' after pioneering brain surgery

Liam Heffernan yesterday underwent a gene transfer procedure in a bid to defeat the rare Batten’s Disease.

The 9 at 9: Wednesday

Nine things you really need to know by 9am: Noonan promises good news in today’s Exchequer figures; two barmen go on trial for the manslaughter of a customer who drank himself to death and why using the word ‘pet’ is insulting to your family moggy, er, animal companion.

# battens-disease - Tuesday 26 April, 2011

Little Liam sets off for pioneering brain surgery

Two year old Liam Heffernan, who has Battens Disease, will leave from Dublin Airport today to undergo medical treatment in the USA for the disease, which his older sister died from.

# battens-disease - Wednesday 19 January, 2011

Brother of tragic Saoirse may be sent to US for trial treatment

Parents of little girl who died yesterday of rare Batten’s Disease “hopeful” that her brother Liam may get latest medical help.