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#batten's disease

# battens-disease - Thursday 26 February, 2015

'I know the current system doesn't work, I've buried two children'
# Rare Diseases
# Rare Diseases

'I know the current system doesn't work, I've buried two children'

Feb 26th 2015, 5:30 PM 23,258 Views 3 Comments

Both of Tony and Mary Heffernan’s children died at the age of 5.

# battens-disease - Sunday 4 May, 2014

Family loses "superhero" second child to rare Battens Disease
# RIP
# RIP

Family loses "superhero" second child to rare Battens Disease

May 4th 2014, 9:46 AM 32,713 Views 44 Comments

Liam Heffernan died in Kerry General Hospital early this morning.

# battens-disease - Tuesday 6 August, 2013

Parents concerned over hours of HSE care for dying son

Parents concerned over hours of HSE care for dying son

Aug 6th 2013, 8:30 PM 18,838 Views 31 Comments

Liam Heffernan is just five years old, but does not have long to live. His parents say they are looking for more help from the HSE.

# battens-disease - Wednesday 29 February, 2012

270,000 people in Ireland suffer rare health condition
# Health
# Health

270,000 people in Ireland suffer rare health condition

Feb 29th 2012, 7:10 AM 6,447 Views 7 Comments

An organisation representing sufferers has launched a campaign for better care for patients with unusual disorders.

# battens-disease - Monday 28 November, 2011

Little Liam receives bravery award
# Bee For Battens
# Bee For Battens

Little Liam receives bravery award

Nov 28th 2011, 2:38 PM 3,466 Views 4 Comments

Three-year-old Liam Heffernan and his family are celebrating after the Kerry native won an award for bravery. Liam has Batten’s disease and underwent brain surgery in New York recently.

# battens-disease - Wednesday 17 August, 2011

Column: ‘After watching my daughter die, we had to do everything’
# Opinion
# Opinion

Column: ‘After watching my daughter die, we had to do everything’

Aug 17th 2011, 7:43 AM 105 Views 13 Comments

Tony Heffernan describes taking his three-year-old son to New York for brain surgery – and why he’d have done it himself if he knew how.

# battens-disease - Wednesday 18 May, 2011

Kerry toddler Liam Heffernan making "awesome" recovery from brain surgery in New York
# Liam
# Liam

Kerry toddler Liam Heffernan making "awesome" recovery from brain surgery in New York

May 18th 2011, 1:35 PM 1,800 Views 0 Comments

Liam, 2, is the youngest person to ever receive the pioneering treatment which aims to counter the rare neurological disorder he suffers from, Batten’s Disease.

# battens-disease - Wednesday 4 May, 2011

Irish boy, 2, 'recovering well' after pioneering brain surgery
# Liam
# Liam

Irish boy, 2, 'recovering well' after pioneering brain surgery

May 4th 2011, 9:45 AM 734 Views 0 Comments

Liam Heffernan yesterday underwent a gene transfer procedure in a bid to defeat the rare Batten’s Disease.

# battens-disease - Tuesday 26 April, 2011

Little Liam sets off for pioneering brain surgery
# Surgery
# Surgery

Little Liam sets off for pioneering brain surgery

Apr 26th 2011, 8:23 AM 1,153 Views 0 Comments

Two year old Liam Heffernan, who has Battens Disease, will leave from Dublin Airport today to undergo medical treatment in the USA for the disease, which his older sister died from.

# battens-disease - Wednesday 19 January, 2011

Brother of tragic Saoirse may be sent to US for trial treatment
# Saoirse
# Saoirse

Brother of tragic Saoirse may be sent to US for trial treatment

Jan 19th 2011, 1:35 PM 2,245 Views 0 Comments

Parents of little girl who died yesterday of rare Batten’s Disease “hopeful” that her brother Liam may get latest medical help.