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#Cystic Fibrosis Association of Ireland

# cystic-fibrosis-association-of-ireland - Wednesday 1 June, 2016

"A travesty" - Cystic fibrosis sufferers angry over lack of funding for potentially life-changing drug
# Not Cost-effective
# Not Cost-effective

"A travesty" - Cystic fibrosis sufferers angry over lack of funding for potentially life-changing drug

Jun 1st 2016, 8:33 PM 12,512 Views 66 Comments

Meanwhile, the cancer drug Pembrolizumab has been approved for reimbursement by the HSE.

# cystic-fibrosis-association-of-ireland - Monday 21 January, 2013

Negotiations underway over new CF drug deemed 'too expensive'
# Cystic Fibrosis
# Cystic Fibrosis

Negotiations underway over new CF drug deemed 'too expensive'

Jan 21st 2013, 10:33 AM 6,333 Views 23 Comments

Irish health authorities will negotiate the price of a “groundbreaking” new treatment for cystic fibrosis, which would currently cost the State more than €28 million annually.

# cystic-fibrosis-association-of-ireland - Tuesday 18 December, 2012

St Vincent’s to provide two extra rooms for Cystic Fibrosis patients
# Cystic Fibrosis
# Cystic Fibrosis

St Vincent’s to provide two extra rooms for Cystic Fibrosis patients

Dec 18th 2012, 8:51 AM 2,725 Views 4 Comments

Two in-patient rooms will be held in reserve for emergency CF admissions – but patients say the arrangement falls short.

# cystic-fibrosis-association-of-ireland - Tuesday 27 November, 2012

Five cystic fibrosis patients waiting for room at St Vincent's
# Cystic Fibrosis
# Cystic Fibrosis

Five cystic fibrosis patients waiting for room at St Vincent's

Nov 27th 2012, 6:04 PM 4,961 Views 19 Comments

The Cystic Fibrosis Association of Ireland has requested a review of the management of CF beds at the hospital.

# cystic-fibrosis-association-of-ireland - Friday 9 November, 2012

Cystic Fibrosis Association welcomes granting of licences for embryo testing
# Screening
# Screening

Cystic Fibrosis Association welcomes granting of licences for embryo testing

Nov 9th 2012, 4:10 PM 4,848 Views 12 Comments

Clinics will now offer tests to screen for diseases like cystic fibrosis as well as abnormalities that can cause miscarriages and IVF failure.

# cystic-fibrosis-association-of-ireland - Saturday 14 July, 2012

Emergency services forced to abandon 65-mile kayak for Cystic Fibrosis
# Cystic Fibrosis
# Cystic Fibrosis

Emergency services forced to abandon 65-mile kayak for Cystic Fibrosis

Jul 14th 2012, 10:10 AM 6,470 Views 19 Comments

Three men have raised over €11,ooo to go towards the construction of a dedicated Cystic Fibrosis Unit at Waterford Regional Hopsital but their planned journey was affected by the weather this morning.

# cystic-fibrosis-association-of-ireland - Tuesday 4 October, 2011

Cystic Fibrosis ward to open at Crumlin hospital today
# Cystic Fibrosis
# Cystic Fibrosis

Cystic Fibrosis ward to open at Crumlin hospital today

Oct 4th 2011, 10:06 AM 893 Views 5 Comments

President Mary McAleese will be at Our Lady’s Children’s Hospital today to open a state-of-the-art, four-bed ward for patients with Cystic Fibrosis.