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Dublin: 5 °C Tuesday 22 October, 2019

#Dravet syndrome

# dravet-syndrome - Tuesday 5 September, 2017

Family of Ava Twomey separated as she remains in Netherlands for medicinal cannabis treatment Cbd This post contains videos

Family of Ava Twomey separated as she remains in Netherlands for medicinal cannabis treatment

Ava’s mother Vera led a public campaign for her daughter to access medicinal cannabis in Ireland.

# dravet-syndrome - Friday 21 April, 2017

Vera Twomey stopped at Dublin Airport attempting to bring medicinal cannabis into the country

Twomey said she declared the medication and it was confiscated by customs officials.

# dravet-syndrome - Thursday 9 March, 2017

Vera Twomey urges Simon Harris to contact her after being given 'irrelevant' information to help Ava

Twomey said that, following Tuesday’s meeting in Leinster House, she was given inadequate documents by the HSE.

# dravet-syndrome - Thursday 23 February, 2017

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview

Vera Twomey met with Health Minister Simon Harris today.

# dravet-syndrome - Monday 2 January, 2017

Cannabis ingredient to be classed as medicine in UK Cbd

Cannabis ingredient to be classed as medicine in UK

Companies wishing to sell CBD can apply for a licence from the Medicines and Healthcare products Regulatory Agency.

# dravet-syndrome - Wednesday 2 November, 2016

"If we don't get the legislation, we mightn't have Ava for much longer": A mother's 150-mile protest

Six-year-old Ava has a rare condition called Dravet syndrome. Her mother Vera wants legislation approved quickly to help her.

# dravet-syndrome - Saturday 24 September, 2016

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy

TDs will debate medicinal cannabis use in the near future.

# dravet-syndrome - Friday 29 April, 2016

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine

Some 11 types of pharmaceutical medication have failed to improve Ava Barry’s condition.