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#fiona bailey

# fiona-bailey - Tuesday 11 June, 2019

Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease Sma

Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease

The drug has been approved for children with SMA Type I, II or III on “an exceptional and individualised basis”.

# fiona-bailey - Thursday 28 February, 2019

'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication Spinraza This post contains videos

'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication

About 26 children with SMA, a rare muscle-wasting condition, could benefit from Spinraza.