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Column To understand autism, try to climb into the shoes of someone with the condition

Stigma surrounding Autistic Spectrum conditions grows because the issue is not talked about enough in society. Tackling misunderstandings requires people to talk openly and honestly, writes Adam Harris.

HAPPY WORLD AUTISM Awareness Day! Throughout the globe today buildings such as the Empire State Building, the Pyramids, the London Eye and our own Blarney Castle will turn blue to mark the day and events and fundraisers will be held in towns and cities all around the world.

What’s it all about, though? For many touched by the condition or families struggling to obtain diagnosis, access services, or even just face up to the daily challenge of “living with autism” today may seem very tokenistic – a field day for the media and an opportunity for the great and good to be seen to support the condition before all reverts to normal tomorrow – little more or little less.

One in 88 people on average have a condition on the Autistic Spectrum

It is very easy to understand how people might feel like this – shouldn’t autism get more attention year round? Shouldn’t more funds be provided to supporting those with the condition instead of needing to organise massive fundraisers? Well, a lot of that is probably true but at the end of the day you still have to play the hand you are dealt and for us, the AS community in Ireland and across the world, today is an opportunity for a number of reasons.

One in 88 people on average have a condition on the Autistic Spectrum. If you break it down that should mean 1 to 2 people in your year group in school and maybe double or three times that amount in your college course; if you work for a multinational or large company it could mean between 5 and 10 colleagues and many, many more in the area you live, the events you attend and the people you meet throughout your life.

Yet if we are honest – what do the public really understand about the condition? How are our teachers or lecturers trained to support those affected? Are our companies open to people with autistic conditions working for them? I think it’s fair to say on all fronts – more needs to be done and before that more needs to be understood. The sad reality is that of the examples I have just listed the representation of people with autism is not proportional because those with the condition quite simply can’t cope or aren’t provided with the support they need in those environments.

‘The journey of a 1,000 miles starts with just one step’

Robert Kennedy once said “The journey of a 1,000 miles starts with just one step” and really that is what today is about. It would be lovely to think that when the clock strikes midnight and the day draws to a close, the public would understand the condition, employment for those with Autism would soar, bullying and exclusion disappear and the education system run like clockwork for those with the condition, but that won’t happen. What we can do today though is make the initial contact, take that first step, we can challenge those around us to try and learn something about the condition they didn’t know already, we can inform professionals be they teachers or employers about the condition and through media coverage and blogs; help them to climb into the shoes of someone with the condition and get some small insight as to how those on the spectrum operate.

If we can achieve that well today has been a massive success, and the journey won’t stop there. The employer who is struck by the fact that 86 per cent of those on the spectrum are long-term unemployed, will be inspired to take positive action, the teacher who thought the child in her class was just bold may try and look for solutions to the issues arising and people all around the world may try to be just that little bit more inclusive as they go about their day to day activities.

Destroying stigma

Before I conclude, I also think there is another positive aspect to today. In Ireland, and in many other countries, there is a big stigma around autism. I have met so many parents petrified to tell extended family, friends or other parents about their child’s condition for fear that it will lead to their exclusion or isolation. I know from my own experiences, as someone with Asperger’s Syndrome, as well as from speaking with others that the worry and discomfort I used to feel in telling someone, even my own best friends, about having the condition for fear that it would separate me from the pack or make me stand out. While some of this does stem from the fear of being treated “special” or differently, which I have written about before, much of it also stems from the fact that we don’t discuss the condition enough as a society and so don’t know how people will react to us talking about it.

Today, we put the shame to one side. Not only can we acknowledge and talk about our condition but we can be proud of who we are. If we all were to achieve that today, to get into the celebratory feel, to realise the world’s buildings are lit up for us and to see the joy so many with the condition bring to the world (not to mention to Aspie geniuses such as Einstein!) then the day is not tokenistic and is not once off because if those of us with the condition all learn to talk and open up more about it – understanding will grow and through our own self-advocacy awareness, openness and support across society will surely increase.

Happy World Autism Awareness Day – enjoy it, use it!

Adam Harris is the founder of AspergersAdvice.org and the Disability Advice Network. AspergersAdvice.org is an online support and social hub website for those affected by Asperger Syndrome and their families.

To find out more about this project, Adam’s story, Asperger Syndrome or other projects being planned by the Disability Advice Network or to get involved then please email AspergersAdvice@gmail.com or on Twitter @AspergersAdvice.

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22 Comments
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    Mute My EL531W
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    Aug 19th 2014, 3:35 PM

    Is there statistics on how many people deleted it after downloading?

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    Mute Richard Cynical
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    Aug 19th 2014, 3:58 PM

    Delete your Facebook. You will thank yourself for it, trust me!

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    Mute Nigerian Prince
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    Aug 19th 2014, 4:18 PM

    Forced to download messenger, fećk’em, just deleted the FB application instead

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    Mute Chief
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    Aug 19th 2014, 4:19 PM

    Or just hide the people and stuff that annoys you. And fill your feed with stuff that interest you

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    Mute Donna Marie Marshall
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    Aug 19th 2014, 4:20 PM

    I did and I am :)

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    Mute Nigerian Prince
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    Aug 19th 2014, 4:42 PM

    @chief I don’t have a problem with the people on FB but FB itself, if I could meet up with all the people instead it would be much better

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    Mute colin power
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    Aug 19th 2014, 4:52 PM

    Definitely.. Couldn’t agree with you more.. So many other ways of staying in touch these days without everyone knowing your business.. Can easily say I will never go back on Facebook.

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    Liam
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    Mute Liam
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    Aug 19th 2014, 7:55 PM

    Ya, just write some letters and post them.. its cooler and more fun..

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    Mute Niall O Bhrion
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    Aug 19th 2014, 3:39 PM

    It was effective because users did not have a choice. It was not a brilliantly successful marketing ploy

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    Mute Stacey Redmond
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    Aug 19th 2014, 4:46 PM

    I downloaded when I basically had to, hated it and then erased. I just access fb messages through Web browser on my phone.

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    Mute Eamonn O'Callanain
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    Aug 19th 2014, 4:54 PM

    There’s a pretty cool workaround that reinstates the messaging facility from within the FB app itself (on IOS).
    Delete FB Messenger app
    Select the”Messages” icon on bottom if regular FB app.
    You will be redirected to App Store – click to install Messenger app
    But as soon as install begins, cancel it.
    Go back to FB app and voila, the “Messages” facility will work as before from within the FB app.

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    Mute Orange Order Loyal
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    Aug 19th 2014, 5:01 PM

    I deleted the messenger app, them deleted my Facebook app, re installed Facebook and I’m back to using normal message service!

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    Mute Melissa Sweeney
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    Aug 19th 2014, 6:55 PM

    Thanks for that tip :-)

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    Mute Stephen Buggy
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    Aug 19th 2014, 3:44 PM

    Have you read the Terms before you download it? It has access to pretty much everything on your phone! SMS, Phone Calls, Can record audio without permission, etc. Thanks, but no thanks!

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    Mute Amy gaffney
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    Aug 19th 2014, 3:52 PM

    No they don’t. I compared the permissions on my apps after reading about it, none of the apps on my phone require those permissions. I don’t know what other people are downloading though!

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    Mute David Evans
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    Aug 19th 2014, 5:13 PM

    Let’s just say hypothetically that those permissions weren’t there. In a typical scenario you want to take a picture (in the app) and send it to a friend, without the pre-configured/installed permissions you would be asked *every* single time you take a picture: “Facebook messenger would like to use your camera, click OK to allow it this time”.

    That’s what those permissions are for, in the hypothetical scenario clicking OK every single time will get frustrating pretty quickly.

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    Mute David Evans
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    Aug 19th 2014, 6:37 PM

    For those ‘red thumbs’, would you care to elaborate what you don’t agree with?

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    Ger
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    Mute Ger
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    Aug 20th 2014, 4:20 AM

    Your shirt. Who wears florescent green!?

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    Mute Stephen
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    Aug 19th 2014, 3:55 PM

    There’s internet on computers now?

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    Mute John Paul Carroll
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    Aug 19th 2014, 3:49 PM

    Well it might be good or harmless, but I am in principle against things that you have to do or else ….

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    Mute Liam Ó Séicspéir
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    Aug 19th 2014, 4:43 PM

    I don’t have Facebook because I don’t have any friends :(

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    Mute Gagsy 99
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    Aug 19th 2014, 4:39 PM

    I’m outraged.
    I don’t why but I’m absolutely outraged.

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    Mute Pat Kirwan
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    Aug 21st 2014, 10:56 PM

    It’s outrageous that you are outraged and I am outraged by the level of your outrageousness.

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    Mute Dave Lawless
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    Aug 19th 2014, 5:01 PM

    I didn’t download it, not because of the permissions issue but because I don’t want another app. There is enough messenger apps (viber,whatsapp etc) I’ve a phone, if you want me then call or text me.

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    Mute Ian Walsh™
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    Aug 19th 2014, 6:28 PM

    And who owns WhatsApp Dave?

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    Mute Dave Lawless
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    Aug 19th 2014, 7:00 PM

    I don’t use it. I was using it as an example

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    Mute Roland Boros
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    Aug 19th 2014, 4:01 PM

    Can’t you just use your pc to view messages without downloading messenger on pc?

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    Mute Neal Ireland Hello
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    Aug 19th 2014, 4:27 PM

    PCs are a bit hard to carry around.

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    Mute Joe Andrews
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    Aug 19th 2014, 4:33 PM

    Everyone i know has deleted it! Why can’t they leave things alone!!!

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    Mute Richard O'Rourke
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    Aug 19th 2014, 3:34 PM

    Have been using it for well over a year now. It’s so good that I rarely use Whatsapp as a result. I really hate the chat bubbles, so that’s probably part of the reason.

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    Mute Chef Anthony
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    Aug 19th 2014, 4:21 PM

    To download press any key. Where’s the any key ?

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    Mute Niall Condren
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    Aug 19th 2014, 6:15 PM

    I deleted Facebook about three years ago. Best decision I’ve ever made

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    Mute ©JP Foley
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    Aug 19th 2014, 5:16 PM

    I deleted Facebook instead!

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    Mute Dylan Kearns
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    Aug 19th 2014, 9:48 PM

    Oh some of you deleted Facebook instead, well aren’t you’s too cool for school

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    Mute damian
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    Aug 19th 2014, 7:34 PM

    Overreaction on this one was hilarious… Usual scaremongering. If people actually looked into the permissions and what they were used for, then there’d be no problem.

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    Mute Unitedpeople
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    Aug 19th 2014, 7:17 PM

    Uninstalled it.
    Thanks – but no thanks.

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    Mute Anton de Buitlear
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    Aug 19th 2014, 6:29 PM

    How do I delete my Facebook,

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    Mute onlybuzzinwitcha
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    Aug 19th 2014, 8:32 PM

    You have to request it by email

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    Mute Bob MacBob
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    Aug 19th 2014, 7:53 PM

    An awful lot of misplaced hysteria on this one. Read the terms and conditions of any advanced Android messaging app (e.g. Skype or Viber).

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    Mute Ollie
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    Aug 19th 2014, 8:11 PM

    Didn’t read all the comments so apologies if I’m replicating one but to send a message just log into Facebook through Google on your phone. No need to download messenger

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    Ger
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    Mute Ger
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    Aug 20th 2014, 4:23 AM

    Not going to to download the messaging app. If the message is so urgent that people can’t wait til I can access Facebook on my laptop or computer then they should be calling or texting, not Facebook IMing me

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    Mute Kris Keogh
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    Aug 19th 2014, 8:58 PM

    one positive thing about the Facebook messenger app I don’t have them stupid circles popping up when someone sends me a message anymore they where a serious irritation.

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    Mute Paul McNevin
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    Aug 20th 2014, 2:49 AM

    Just use Facebook through your phone/tablet browser, that way they cant force you to download it.

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