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Dublin: 10 °C Saturday 25 May, 2013

Gluten-free product allowance cut for coeliacs

Irish Pharmacy Union says HSE introduced cut with immediate effect – and no warning.

The wheat, barley and rye protein gluten is bad news for coeliacs - and now the help they receive from the State to pay for their foodstuffs has been cut.
The wheat, barley and rye protein gluten is bad news for coeliacs - and now the help they receive from the State to pay for their foodstuffs has been cut.
Image: AP Photo/Charlie Riedel

THE IRISH PHARMACY Union has warned this evening that gluten-free products will no longer be reimbursed by the Government.

This cutback will affect people with coeliac disease. Their digestive system can not tolerate gluten – a common protein found in wheat, barley and rye – and they have to pay higher prices for gluten-free products. Up until now, many coeliacs could claim back the price of basic gluten-free foodstuffs.

However, the HSE today issued a circular which said that gluten-free products will no longer be covered under State schemes such as the medical card, drug repayment schemes and long-term illness schemes.

The cut came into effect last Friday – September 1.

The notice of the cut was circulated at midday today – September 3.

Cathy Maher, vice-president of the Irish Pharmacy Union (the IPU), told TheJournal.ie this evening:

The HSE hasn’t communicated this effectively with patients. It’s back to us to convey the bad news again.

Maher said she had to break the news to a customer today who arrived to order her usual batch of breakfast cereal and other gluten-free foodstuffs – that customer was “absolutely shocked” to hear that the reimbursement had been discontinued. Maher said: “It’s really unfair, it goes against a whole community of people. A loaf of gluten-free bread can cost as much as three or four euro and drug payment schemes did mitigate some of the costs.”

One in every hundred people in Ireland suffer from coeliac disease to varying degrees of intolerance. It is one of the highest incidences of coeliac disease in the world.

The IPU were similarly only informed by text message on Friday of the removal of three drugs from the list of those which can be reimbursed under certain State schemes. These are:

  • Glucosamine – which deals with wear and tear of the joints in osteoarthritis patients;
  • Omega 3 triglycerides – which are beneficial win conjunction with cholesterol-lowering drugs, and are often prescribed by cardiac doctors;
  • Orlistat – known as Xenical  here – a weight-reduction drug available on prescription.

The former two drugs are particularly of benefit to older patients, according to Maher.

These cuts are separate to the €130m cuts announced by the HSE on Thursday evening.

Read: Varadkar defends €130m in health cuts>
Read: Reilly’s position as Health Minister ‘untenable’, says FF>

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Comments (112 Comments)

  • My girlfriend needs a gluten free diet. Shops like dunnes do have an excellent dietary special aisle, but the prices are expensive…if only one of the big shops would lower their prices they could make very good business.

    Reply
    • I think you can claim 20% of spending on gluten-free foods in supermarkets back as part of your medical expenses each year, but I’m not sure if this has been cut also as part of these changes. While prices could do with being lowered in supermarkets too, they are a lot cheaper than pharmacies for speciality foods.

      Also, if you buy them while using a club card or loyalty card or whatever your own supermarket uses, they can give you a print-out at the end of the year to show everything you bought, so that you don’t have to keep all the receipts.

      It won’t save people as much as the medical card scheme did, but as someone once said, every little helps.

      Reply
    • I am also Coeliac and have been for some 25 years.I never got gluten free products in the Chemist though,always bought in the Supermarkets which I find are still so very expensive,costs a lot of dosh each year to buy.I hope it is still possible to claim 20% back on end of year Revenue forms? That is all I have ever received each year.Wish someone would have cheaper G/F bread.

      Reply
  • The way it was done so quietly and with short notice is so sneaky,and (they) wonder then how people get so upset?

    Reply
  • JTHM 03/09/12 #

    There was a gluten-free product allowance? Now I find out. ( not trolling for once, my daughter has a severe intolerance ).

    Reply
    • no there is a GF allowance per say, items were able on prescription. on the medical card, it was to help those on low income to allow them to follow a GF, there used to be quite a lot of products on it such as flour, biscuits, pasta, cereals. but any luxury items were taken off it a few years ago. there was also help in a different form is you didn’t have a medical card and go to your local community welfare officer, which is means tested. But with the employment rise over the last few years so many more people have med cards and more pressure been put on the system so those that do need it, have lost it. The government should be creasing jobs and reducing their own salaries. not this.

      Reply
  • Ah this really is the lowest of the low, just when you think this government can’t go any lower they go and do a thing like this. I know a few coeliac’s , one lad has basically been a coeliac all his life and had to get everything GF, from flour to make anything he needed to breakfast cereal, bread and pizza bases. If he found biscuits or scones that were GF it was a real treat for him. I know his family are not too well off and this was got on the drug payment scheme every month so this is really going to hit them hard. Not good, not good at all.
    You have to ask who these bastards are going to hit next, diabetic’s, asthmatic’s what about epileptic’s or maybe the deaf and blind? We all seem to be taking it saying “well at least we’re safe”, but safe untill when? This government seem to be constantly pushing it, testing the waters to see how far they can go, small cuts here, big cuts there and every time, despite a hue and cry, they get away with it. All we ever seem to say is “they wouldn’t get away with this in France”, so why are they getting away with it here, even they must be surprised with how much they’ve gotten away with at this stage?

    Reply
    • As a diabetic person, I’d say it would actually make sense if they stopped allowing people to claim back for ‘diabetic’ food. Eating healthily as a diabetic is just a case of avoiding high GI items, being sensible with carbs and sugar, and being balanced. Specially made ‘diabetic’ food is nothing more than an overpriced scam, in my experience. It’s perfectly possible to eat well by making good choices out of the ‘normal’ food available. Whereas coeliacs genuinely do need special food. Very expensive it is too. This is a very bad, and short sighted move, to stop helping people who genuinely need to buy this pricey stuff.

      Reply
  • Thanks Andrea! Golden wedding and 73rd birthday coming up early 2013.

    Reply
  • To say I am disgusted is an understatement.My 4 year old is a coeliac and I got stuff like bread,pasta and cornflakes under this scheme.I didn`t know a thing about the cut until I read it here 5 minutes ago.This is going to put my food bill up by a substantial amount every week now.I never took advantage of the scheme and only ever ordered what I needed but last week I got an order (thankfully) and they chemist gave me extra which I tried to give back at the time but they insisted I take it.Now I know why.

    Reply
    • Hi Mairead – I’m really sorry to hear of the difficulties this is going to cause you and your family.
      I don’t know if your pharmacist actually knew of the cut though. When I was speaking to the Irish Pharmacy Union there this evening, they were pretty disgusted as their members only received the news today and they had no time to warn people.
      It’s pretty poor communication of the news from the HSE, for sure.

      Reply
    • Hi Susan, thank you for getting back to me and also for the sympathy.I`m sorry, I was in such shock when I read the article that it didn`t all sink in! I read it again after I posted and saw the part about the pharmacies being kept in the dark too. I feel for them because they will be the ones suffering the wrath of people tomorrow who go in expecting their foods. My child wasn`t putting on any weight and I was sick with worry until she was diagnosed.It was such a relief to find out what was wrong and I straight away began the coeliac diet. I paid for all the foods myself at that time, as I didn`t know about the scheme and to be honest, it began to cripple me every week as she is a fairly fussy eater, so I had to buy things like pizza bases, which are €4 in some supermarkets.The dietician told me about the scheme and it was great for us. My 2 year old is now showing signs of being a coeliac and I have to have her tested so I may have two to buy for soon!

      Reply
  • EMD 03/09/12 #

    This is really going to impact our budget, my husband is a coeliac and the special food is very expensive. He cooks a lot from scratch but still has to buy cereals etc. Well a bit of an odd one to axe considering high numbers of coeliacs in Ireland. I guess it is better than cutting support for expensive pharma medication…

    Reply
    • I suffer from chronic pancreatitis and take expensive anti oxidants that are not prescribed and thus not reimbursed and have a special diet that also costs considerably more than a normal diet. I recognise that the State is seriously underfunded and don’t expect them to pay for my food and over the counter medicine. I didn’t know that basic foodstuffs for coeliacs were reimbursed and believe that should never have been allowed unless some stringent means testing was applied. This reminds me of Dettol and disposable diapers being refunded under the GMS some years ago!

      Reply
    • Mick, I’m a coeliac and the cost of buying gluten free food is extremely high. A small ( half a normal sliced pan) sliced pan is 3€ plus, small boxes of cereals are €4. It’s not lifestyle choice, it’s an auto immune disorder. I have been in contact with many coeliacs through work, and older people in particular only bought gluten free items as they could claim recompense. Not adhering to the diet causes a lot of side effects. I think anyone put on a specialised diet as a result of medical diagnosis should be entitled to claim back. If not then the Govt should introduce a price cap on specialist foodstuffs or scrap vat on them.

      Reply
    • You can’t expect the taxpayer to fund special diets, where would this end? If you have high cholesterol do you get free oats? You need to complain to the people who manufacture and/or import these expensive gluten free foods. I live in Oz and they’re the same price as other foods, you’re being done again by your own people I suspect.

      Reply
    • AIne, as has been said before, it is not a lifestyle choice, it’s an auto immune disorder. Comparing it with someone on a special diet because of high cholesterol is like comparing apples and oranges.

      I’m a galactoseamiac myself but thank God I don’t have it anyway near as bad as coeliacs have it.

      Reply
    • I never said it’s a lifestyle choice. But it IS a condition that can be controlled with careful monitoring and planning. Instead of all this complaining about government cutbacks, why can’t everyone be proactive and target the pharmacies or whoever is charging through the roof for gluten free food?? Complain to them, get the prices lowered. Like I said, proactive.

      Reply
  • They have cited the reason for cutting gluten free food as ‘doubt over clinical efficacy’. Gluten free food is our medicine. Without it we risk long term side effects and even cancer.
    To cut this out for those on medical cards and disability allowance is a disgrace. Gluten free food can be very expensive and those with lower earning potential are going to suffer.
    Targeting coeliacs, with such a large number of us in Ireland, seems unfair.
    I would think there are room for savings in the scheme as products are generally more expensive in the pharmacy than the supermarket. No need to cut it entirely.

    Reply
  • I got to say I really admire the French for the way they fight this kind of thing, the Irish really leave a lot to be desired in the way they meekly accept this kind of treatment for the elitists in this country..

    Reply
  • I have several family members who are coeliac and not one of them ever heard about this scheme. So basically, nothing will change for them but I know how expensive the food is so I feel for the families who have come to rely on it. My sister can’t even use the same butter as the rest of us in case a bread crumb is transferred during buttering. Sounds drastic but a total necessity for her.

    Reply
  • Diagonsed a coeliac last December and we don’t have a medical card. We joined the Coeliac Society of Ireland who offer great advice and produce a guide that outlines all foods that are made purely gluten-free, and ones that are mainstream, but gluten-free (there’s a lot). Yes, if you stuck to just gluten-free products, your shopping bill would soar. But with a bit of planning and research, you can on a budget eat healthy. Don’t forget to keep all your receipts, so you can claim back tax on all gluten-free products at the end of the year.

    Reply
  • I have Coeliac disease and a miniature loaf of bread can cost 3 -5 euro each! Make yourself a sandwich and half the loaf is gone. I get some bread and cereals on prescription through the drug payments scheme, but it only would cover less than half of what one person would eat per month.
    Does anyone think this diet is a real choice? Eat normal food and we can get osteoporosis, immune problems, bowel cancer……
    I can hardly believe Labour can stand over this disgraceful cut, while some wealthy pensioners get the medical card solely on age criteria. Disgusting.

    Reply
  • This is shocking, I’m a diagnosed coeliac but have never used the scheme. I make a lot of stuff from scratch but i have only myself to look after, if i had coeliac children to provide for or was on a very low income this would have a huge impact. Horrible.

    Reply
  • coeliac is a disease not condition the government change that wording a few years ago, it is a genetic condition just like down syndrome.If someone suffering from this disease does not eat gluten free foods, they will die and very slow of malnourishment. they will have no ability to absorb anything as the intestines will be destroyed, hence all sort of disease like cancer etc. Gluten free food have been scientifically proven to help in down syndrome and autism to ease and control symptoms. Gluten is a protein found is oats,barley,wheat and rye, these four cereals are used to bulk up other food to make it cheap to sell and great profit. there are so many companies now not labeling their food/good gluten free as of the new eu directives so life is going to really hard for Coeliac’s now.
    a loaf of bread is €2.99 and €3.49 in tesco and dunnes, 4 rolls are white €3.25 or brown €2.00 , Rolls are tiny same size as the 20cent ones in the bakery ) 2kg Flour is €6.99. I could go on . Pity James O Reilly isn’t diagnosed a Coelia’c then these cuts wouldn’t be entertained

    Reply
  • This is absolutely disgraceful on 2 counts, the 1st being the way is being handled and 2nd the government is targeting the vunerable. I am on a low income and both myself and my son are Coeliacs, I really do not know how I am going to manage!

    Reply
    • I was diagnosed as a Coeliac when I was 15 and the HSE said I wasn’t entitled to that scheme as I was under the care of my parents. Now, I’m a student living away from home and I can’t afford to buy gluten free food as it’s so expensive! Applied again to the scheme and they still said no. People with coeliac disease didn’t ask for this allergy so why should our food cost more.?!

      Reply
    • you didn’t ask for it? People don’t ask for cancer either, get over yourself.

      Reply
    • who is that muppep aine clinton. The cost of eating and buying a gluten free diet is disgraceful. Coeliac is an illness which people have no control over and dont chose to have it. Im a diabetic and a coeliac and believe me trying to juggle the two are a total nightmare.
      We know people dont ask for it and also that people dont ask to get cancer but we wouldnt wish or want people who have cancer to have their medicines stopped due to the crap goverment we have in Ireland.
      Who do these people think they are to play god with our lives and cause problems for people not been able to afford the proper food which will result in costing the country a lot more on hospital cases etc due to been ill.
      Aine your comment is disgraceful and totally stupid and also uncalled for.Get your facts before leaving such a rude comment.That girl is a coeliac and has the right to vent her annoyance at this. Whats yours

      Reply
    • As a result of not following a gluten free diet results in cancer Aine!

      Reply
    • learn to spell Tina. And please read further, it is wholly possible to follow a gluten free diet without it costing a fortune, but you’ll need to put in a little effort!

      Reply
  • And on the same day €600 Billion was paid to bondholders. An utterly morally bankrupt government.

    Reply
    • typo, should be ‘Million’ of course.

      Reply
    • Stop making a nuisance of yourself. Stick to political free-for-all articles. This article isn’t for sparring on.

      Reply
    • So I shouldn’t mention government throwing money at bondholders in relation to an article about government cutbacks?

      Reply
    • There are a multitude of current and active articles on this site dealing with the HSE cutbacks that are clearly designated as forums for amateur politicos like yourself and myself. You already know this as you have commented on them already. This is not one of those articles. Leave it to the people who don’t particularly want every article to be filled with the political snarking. There’s a right time and a right place, and here is neither. If you comment here again, I won’t reply, because I don’t want to bung up the comments here more than I have already. I’ll ask you to appreciate the readers here and do the same.

      Reply
    • Nikolas, the HSE has just axed funding made available to sufferers of a chronic illness on the same day as the Dept. of Finance forks over hundreds of millions to the bondholders of an insolvent bank. How is this not a political issue?

      Reply
    • Nikolas, I’m not one point out the obvious, but surely you are having a laugh if you think these two items are not related. The government is the one that made the decision to cut this scheme and they are also the ones who insist that bond holders get paid, so don’t give out to someone for highlighting this. Do you think this scheme would still have been cut if the bond holders had of been burnt in the first place?

      Reply
  • As Marie Antoinette aka Leo varadkar would say “let them eat cake” of course it would have to be gluten free oh wait….

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  • Urgh! The rage is strong in me tonight!

    Reply
  • Typical Government response to the least able to respond to these miserable and unjust cuts while leaving the payments to consultants and doctors totalling 2.9 billion euro untouched.Something morally wrong here, a 10% cut imposed on this group would not see any distress on those concerned but would save the budget health deficit for the whole year. You know who to vote for next time

    Reply
  • Clinical efficacy ??. Fact: coeliac disease is an autoimmune condition whereby gluten ,found in some grains and cereals , when ingested leads to an inflammatory response in the gut resulting in most cases vomiting, diarrhoea , bloating, wind and malabsorption causing vitamin deficiency weight loss and failure to thrive in babies . Repeated inflammatory insults increase the general risk of developing cancer if the gut . Those with autoimmune conditions are at increased risk if developing other ones . Ibs is not to be confused with coeliac disease or inflammatory bowel disease . This is more a wheat intolerance not a chronic illness . The only way to manage coeliac disease is to adhere to a strict gluten free diet .leo vradkar has a medical degree he should be able to comprehend this and educate the government . If not they can check out http://www.coeliac.ie convenience gluten free food is more expensive . My aunt bakes her own bread but foods cannot be prepared in factories with gluten containing products at all !! Nice to see the government once again thinking about their citizens with this cut and nice to see them manage it so well and transparently ….not !!

    Reply
  • This Minister has to go! I am not coeliac, but at 72 years of age I am prescribed cholesterol meds and Omega triglycerides. These we’ll now have to pay for, on just the state pension! Was so hopeful 18 months ago when the coalition came to power. Yugh!

    Reply
  • And this is the crux of the matter, as Ollie said above, when people are disgnosed with coeliac diease they are told they have an autoimmune disease and given all the information they need to care for themselves. This is care in the community at it’s most basic form, the patient cares for themselves by conforming to a rigid diet which means they will be free from symptoms for life, they may attend a consultant once or twice a year to confirm that everything is ticking along fine. To assist in this the state agrees to help with the high cost of this rigid diet, this is a mutually beneficial agreement as both sides get what they need from it, the patient gets their expensive food and continues to be well and the state gets to have the patient treat themselves.
    But when this agreement is upset, when the expensive food must be paid for by the patient it’s inevitable that, especially in the current climate, there will be many people who simply cannot afford the prices of the GF food and their diet will slip. The result of this in time will be hospital admissions and an even bigger cost to the state, this is cutting corners, saving maybe tens of millions but the cost of that will be hundreds of millions in hospital admissions, expensive tests and of course suffering. Needless suffering.

    Reply
  • Not all that surprised it got cut, the pharmacies were milking it. My Father who is a coeliac was told by his doctor about the scheme, he got a couple of packets of biscuits and a loaf of bread from the chemist, cost the state about 50 euro, he never again got them there!! Its a pity really but like everything if the state is picking up the tab its open to abuse.

    Reply
  • Disgraceful not caring Government , who go after the most vulnerable in society always first .
    Greatly damaging week for Government already and they are not back from their holidays yet.
    Will the great socialist Party – Labour, be seen to take a stand against this ? Or will they as usual splutter along and accept their useless fate , for the sake of power – isn’t it always about power, over social concern, Labour ?

    Reply
  • This is disgusting. My wife’s coeliac. I have watched her suffer terrible stomach pains, cramps and skin rashes if she consumes gluten. Her gluten free bread, pasta and cereal are her medicine. Gluten free is not a fad diet. It’s the only staples a coeliac can eat and it works. I will be emailing my Labour Td tonight. It’s time to ramp up the pressure on these overseers of hardship. I encourage all coeliacs and their family to do the same. Ps We have discovered Aldi sell a good range of gluten free bread, pasta sauces etc. Ask in store for a list of their GF products.

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  • An utter disgrace. This is a sad reflection on our society .

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  • Disgraceful. Underhand in the method used to revoke the scheme.
    I am annoyed that labour are not doing what they were put there to do: protect the vulnerable. FG are only interested in preserving the wealth of the ‘elite’ by taxing and cutting the incomes and allowances of the poorer. They need to be removed from power

    Reply
  • Makes no sense. Going to cost the country more in the long run to deal with coeliac cases. Short term abolition of a preventative measure creating a long term problem.

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  • Susan is there any figure available for how much this is actually costing ?

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    • Not yet, Neicy. Just breaking the story now so it might be tomorrow before I can get any more. I have been trying to contact the HSE but their out-of-hours voicemail box is full…

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    • Thanks Susan – you are on the ball tonight :) i cant imagine it is hundreds of millions. It seems a petty thing to take IMO. Look forward to seeing the figures tomorrow

      Reply
    • No problem. It might actually be a large(ish) amount as Ireland has one of the highest incidences of coeliac disease in the world. Saying that, people suffer it to varying degrees and not everyone would claim back costs on one of these schemes. It will be interesting to know the real figure so we’ll get on to that.

      Reply
  • Dose the tax rebate still apply !! For g/ free bread from you local shop

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  • I was thinking about this cut last night. As a Coeliac I’d already seen how other countries treated Coeliacs better than Ireland, before this cut. In Malta they received a basic food allowance through their pharmacies for free. It was the same in Italy. In the UK Coeliacs are allowed a set number of items but with a huge variety to choose from. Now it will be nothing for us here.

    To the ‘ why not avoid gluten/just eat rice’ comments above – you try rice for breakfast, lunch and dinner every day, see how that works out!!

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  • If you don’t suffer from the disease you don’t really understand the implications of the cuts. Gluten free diet is the only treatment option for this disease. ….What next no insulin for diabetics?

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  • To qualify for a medical card nowadays, you have to be pretty damned broke. And those card holders that are also coeliacs genuinely cannot afford food without this.

    This is just evil.

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  • Ryan'O 03/09/12 #

    FFS! Q the delusional comments from people who actually approve of this dangerous government. Oh yes FG/LAB coalition is working! We all have a part to play in suffering while they pretend to fix this mess of a country. How much more can people take!?

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  • What a cheap shot at us Coeliacs. It is really expensive to buy the staple gluten free foodstuffs and the allowance is vital. The figures show that that when person is a Coeliac there is a one in ten chance that a member of their family will also be coeliac. It is hereditary autoimmune condition. Therefore this cutback will severely affect families where a few members have the condition. Once again a stealth cutback implemented with no public debate.

    Reply
  • louise 03/09/12 #

    When are people gonna stand up and be counted rather than moaning on these sites!!!!

    Reply
  • 180228 03/09/12 #

    I was on Xenical for PCOS, and it was really good, but the side effects weren’t worth it.

    Reply
  • An utter disgrace. I would love to know how much savings are to be made from this ridiculous cut

    Reply
  • Don’t be fooled! This is ‘death by a thousand cuts’ affecting minorities at first then those with special needs, the aged, the sick until the fabric of care in this country collapses. The decline in Health Care has already started and no one has shouted stop. The Voice, I believe will come from the elderly to save what will be left our health system.

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  • “Death by a thousand cuts” I like that analogy. I was accused by a family member a few months back of getting on my soap box when I warned that unimaginable cuts were coming and unless we protested NOW, it would be the end of our Society as we have known it. Get out and support EVERY protest you hear about, demand that our Government stand up for the poor, oust them by whatever means necessary if they don’t, burn the bondholders, force the banks to fall on their sword and let the chips fall where they may. It can’t be any worse than what is lurking down the line.

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  • Shhh listen do you hear Beggs or o O’Connor protesting about any of the cuts announced by Reilly……….nope neither did i…How much more cutbacks should the public have to endure before the elephant in the room is finally addressed… yes Croke Park …Is it that important that the vulnerable in society have cuts upon cuts heaped on them just to preserve the terms and conditions that some sections of the public sector continue to enjoy …I am not talking about the smokescreen been displayed by government in complaining about the pay of consultants…I do not have any issue with the pay of consultants, at least they save lives and provide a service unlike the middle ranking pen pushers in the health service…the mickey mouse managers who are in charge of ordering curtains or are responsible for having the overnight beds made for doctors on call.these are the people that provide no service to the health service yet are immune to change…I am tired of government ministers such as Howlin complain about the salaries of specialists while he authorized cap busting pay for special advisers or while he himself receives a pay that exceeds that of the president of america…So when will the infamous Troika hit politicians and insist on Croke Park been dismantled or will the weak of society continually be abused by the unions and government so as to protect the Croke Park agreement at all costs

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  • Regarding Orlistat – minimally effective and on cessation, all weight returns. Multiple research trials have show that glucosamine does NOT work at all. Omega 3 Triglycerides have a minimal, if any, effect on post cardiac events.
    So for these 3 medicines, well done to the HSE for stopping payment for them.
    There are plenty more medications being paid by taxpayers of extremely dubious efficacy (how well they work)

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  • this is just the start of an attack on those who are least able to defend themselves, more cuts are outlined for future budgets and also the odd one or two will be sneaked in like one was, the troika is calling for cuts to the household allowances,phone ,t.v licence, travel pass, electricity ,fuel allowance. medical cards will again come under scrutiny, the elderly, disables and sick of this country will suffer yet again so as ministers,bondholders and senior civil servants can keep their big salary’s and pensions. time for the people to stand up and be counted, out with the troika, burn the bondholders and get out of the euro, and if merkal and her cronies dont like it then tough luck!

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  • If the government are no longer willing to cover the full cost of GF foods, they could at least still cover the amount which is over and above the cost of ordinary gluten-containing products. I am gluten intolerant, as are my husband an 3 children, and I have first hand experience of what eating gluten can do. Many families are struggling to feed their kids and this will be an extra stress. The suppliers are not to blame for the high costs. Gluten free food costs much more to produce as ingredients are not as mass-produced as wheat and it has to be produced in a dedicated environment to avoid cross-contamination with gluten.

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    • They repay 20% as part of the medical expenses rebate. While keeping all the receipts would be a nightmare, I’ve found the following (my sister-in-law is a coeliac, hence reading up on it):

      Also, if you buy them while using a club card or loyalty card or whatever your own supermarket uses, they can give you a print-out at the end of the year to show everything you bought, so that you don’t have to keep all the receipts. I know that Superquinn, Supervalu and Tesco do this, and I’m sure Dunnes could too.

      It won’t save people as much as the medical card scheme did, but as someone once said, every little helps.

      (I posted this above, just reposting in case it’s of use.)

      Reply
  • My daughter is a coeliac not by choice and not a lifestyle change, this government are a disgrace they still paid out bond on the banks what a joke they don’t care who they hit well hit there wages there expenses vouched and unvouched they better not knock on my door for elections there not welcome

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  • I suffer from Chronic Pancreatitis and I don’t expect an under resourced State to fund my diet and expensive but over the counter anti oxidants. This reminds me of the time when Dettol and disposable diapers were reimbursed. I have little difficulty with hardship cases but the idea of going to your local pharmacy for food with their high margins is just wrong. Period.

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  • Whats next??? concentration camps, round up the weak,the old,infirm,physically and mentally handicapped,unemployed ahh yes our German masters have history when it comes to targeting the vulnerable in society…when are the Irish people going to call a halt to this destruction of our society by outside forces…no fear Kenny, Reilly, Howlin Gilmore etc facing any of the cuts been force on our society and all this before the budget and the €700million that will be cut from the hse budget next year…at least the bond holders got their piece of flesh today with the repayment of their €600m in gambled losses and next week another €1.1b in losses…As Inda says Paddy will pay his debts never mind the Irish lives that will be lost in the process

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    • …they don’t need to round up the weak,the old,infirm,physically and mentally handicapped etc. they can just kill them off by pricing them out of their basic needs such as food, water, medicines etc…

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  • I do understand that coeliac disease is a very serious condition, but why not just avoid the gluten-containing foods instead of paying for expensive gluten-replaced alternatives? There is a huge number of naturally gluten free foods out there. If someone has a peanut allergy, do they get peanut-free snickers on prescription?

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    • because gluten is in sooooooooooooo much food it’s frightening. readly made soups, sauces such as mayonaise , ketchup, vinegar, etc

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    • Because it is easy to avoid food with peanuts – they are all marked. Food with gluten is rarely ever marked, and unfortunately the majority of food contains gluten, including uncooked meats. Not even raw fruit and vegetables in supermarkets can be guaranteed gluten free due to assembly lines. The unfortunate result of this is going to be an obvious burden on the health system in years to come as coeliac sufferers succumb to malnourishment (coeliacs cannot absorb the same level of nutrients from the same level of foods as the general public), obesity (eating more to combat malnourishment), and cancer (generally cancer of the intestine where the glutinous proteins build up, thereby preventing absorption of nutrients)

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    • Far easier said than done. Yes, there are naturally GF foods out there, but should people be deprived of foods such as bread or pasta because of a health issue that can be avoided by adapting their diet? I suspect from your comment that you are not coeliac , nor do you have a family member that is……

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    • “naturally” gluten free bread?? Where please? So by avoiding non gluten free food does it mean we just don’t eat bread which is kind of a staple food in any diet. Get real!!

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  • if everyone who posted here gets outside the dail tomorrow it might make a significant impact on the HSE budget slashing everything that makes sick, disabled and elderly lives bearable. PLEASE protest protest protest!

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    • cant get there , but if i could I’d like to make dinner for the government ,to allow them experience a taste of what Coeliac suffer when gluten enters their diet , a night or two, indisposed they may have a new enlightenment :-(

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  • I am Coeliac and was told I would live longer on the diet because I would be obliged to eat more home cooked non-processed foods. Question: was that HSE coeliac tab pick-up for everyone or just for medical card holders or what?

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  • Well, this is bullshit of the highest order. Have they honestly no idea how expensive gluten free stuff is?

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  • I hope i dont sound too uncaring but why cant people with this disease just cut out wheat and barley from their diets ? Its healthier anyhow.. There are other options such as rice and noodles for carbs…. I think its mainly processed food which contains gluten right ? Isnt it better not to eat that stuff ?

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    • If you tried cutting out wheat, barley, rye,oats, spelt, MSG etc from your diet you would know how hard it is, as gluten is in just about everything which is packaged, not just very highly processed foods. If you have kids it’s even more difficult. Why should coeliacs be NEVER be able to eat bread, pasta, cereal etc. etc. without paying 3-4 times as much for it? Also, it is not always safe to eat foods made from other grains – if they have been produced in an environment which also handles gluten-containing products there may be cross contamination.

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    • You think but don’t know. So don’t comment on something when you think because us coeliacs know how hard it is.

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    • Sinead Keogh there are alot of products that contain gluten, a coeliac has to avoid gluten and it’s not cheap you should read up on this before you say cut out wheat and barley,

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    • Noodles???Thats hillarious Sinead, try pick up any pack of noodles in a supermarket, and see how many don`t have gluten in them.I have only found one packet of rice noodles so far and they cost me a fortune!

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