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THIS WEEK, THE Good Information Project hosted its monthly Open Newsroom session on the powerful movement of patient advocacy and how it might impact the delivery of healthcare that is fair, respectful and effective.
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Moderator Maria Delaney, investigative health and science reporter at Noteworthy, led a fascinating conversation with experts on the subject, examining where health services were letting patients down, and what needs to happen to draw upon those experiences – positive and negative – of users of our healthcare system and really include them in the creation and implementation of change and policy in the sector.
She was joined by Eileen O’Sullivan, independent cancer patient advocate and breast cancer survivor; Derick Mitchell, CEO of the Irish Platform for Patient Organisations, Science & Industry – IPPOSI; Louise Loughlin, national manager for National Advocacy Service for People with Disabilities, which also operates and oversees the Patient Advocacy Service, and The Journal reporter Orla Dwyer.
Watch our recording of the event embedded here to see what the panellists had to say about what patient advocacy means to them, the uphill battle for patients to be heard – and the growing involvement of patient advocates and representative groups to make those voices stronger and more impactful.
This work is co-funded by Journal Media and a grant programme from the European Parliament. Any opinions or conclusions expressed in this work are the author’s own. The European Parliament has no involvement in nor responsibility for the editorial content published by the project. For more information, see here.
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@Sea Graham: been in this morning alrady and in fairness a very stream line and quick service in place. I have also been into my local council office and offered to volunteer to sanitise streets or anything thats needed over the coming week.
As said earlier last week, its a very middle class problem to whinge about remote working while many on lower wages must still be in the retail stores, transportation and of course on the frontline in medical roles. If this does work though, it will be an interesting experiment to see how the world changes once employers and the state realise how many people can actually work from home and not commute daily. Maybe the broadband plan will be implemented to get more people away from Dublin and have less emissions from less commuting. This is the time to get those figures.
@Paul Cunningham: who’s whinging about it Paul? I would have thought anyone who is able to work from home would be delighted to be doing so vs not being able to work at all no?
@RJ: two hours back to me. I’m honestly far more productive working from home. This whole mess might make some employers see that some (not all) staff can be trusted to work from home more frequently now.
Well it’s better than being at home and not working. At least you have something to do in between listening to the kids being bored and hungry. It’s actually much busier than being in the office
@Dara O’Brien: You’d be surprised at the amount of people who imagine they don’t need childcare if they’re at home. You can’t juggle both and deal with colleagues. Most people are grand, but it only takes two otherwise normal people roaring at you to put that down now to put you off the idea.
So I presume the Journal staff are doss… I mean working from home seeing as we have had only one article that isn’t actually “news” so far this morning by 7.27am
This is a very good article…and it is very hard to find a work-life balance when working from home. It is too tempting to work late at night or not work at 2PM. My spouse has been working remotely for a week and is keeping the same disciplines, which is the best way forward.
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