# cystic-fibrosis - Monday 28 January, 2019
It was scary starting a drug trial for my cystic fibrosis. We didn’t know how I would react but thankfully my breathing and energy levels improved, writes Benat Broderick (15).
Share286
# cystic-fibrosis - Sunday 6 January, 2019
Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.
Share54
# cystic-fibrosis - Monday 3 December, 2018
Patients in Ireland are being encouraged to ask their doctors about clinical trials.
Share157
# cystic-fibrosis - Tuesday 18 September, 2018
Tinsley was on the lung transplant waiting list in the US for nine months.
Share1505
# cystic-fibrosis - Saturday 14 April, 2018
Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.
Share266
# cystic-fibrosis - Friday 13 April, 2018
Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.
Share284
# cystic-fibrosis - Sunday 25 February, 2018
Ireland has more cases of cystic fibrosis per head of population than any other country.
Share260
# cystic-fibrosis - Sunday 11 February, 2018
One mother spoke to TheJournal.ie about the battle her child with Cystic Fibrosis has faced.
Share489
# cystic-fibrosis - Thursday 11 January, 2018
Children between the ages of six and 11 will now be able to access the drug in Ireland after yesterday’s announcement.
Share516
# cystic-fibrosis - Tuesday 26 December, 2017
The journalist and Cystic Fibrosis activist has long campaigned for more awareness about the condition.
Share2511
# cystic-fibrosis - Saturday 23 December, 2017
Christmas can be a tough time for those who have lost a loved one.
Share515
# cystic-fibrosis - Thursday 21 December, 2017
Tinsley spent the last number of days on life support in a New York hospital.
Share4171
# cystic-fibrosis - Wednesday 20 December, 2017
Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.
Share158
# cystic-fibrosis - Saturday 26 August, 2017
HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.
Share52
# cystic-fibrosis - Monday 24 July, 2017
A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.
Share232
# cystic-fibrosis - Sunday 7 May, 2017
A deal on the cystic fibrosis drug was finally reached last month.
Share31
# cystic-fibrosis - Thursday 13 April, 2017
Cystic fibrosis can be a life-changing condition for entire families.
Share
# cystic-fibrosis - Wednesday 12 April, 2017
Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.
Share
# cystic-fibrosis - Tuesday 11 April, 2017
Simon Harris made the announcement today in the Dáil.
Share3967
# cystic-fibrosis - Monday 3 April, 2017
Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.
Share1839
# cystic-fibrosis - Sunday 2 April, 2017
Helen Taylor died while waiting for a double lung transplant in 2014.
Share1094
# cystic-fibrosis - Monday 6 March, 2017
Health Minister Simon Harris said that he wants a good deal for the taxpayer and, most importantly, for patients.
Share1918
# cystic-fibrosis - Tuesday 21 February, 2017
Orkambi is estimated to cost €159,000 per patient.
Share2124
# cystic-fibrosis - Sunday 18 December, 2016
The government is making a last-ditch attempt to settle a better price for Orkambi.
Share
# cystic-fibrosis - Thursday 8 December, 2016
The drugs are currently too expensive for the HSE to make available to patients.
Share1
# cystic-fibrosis - Wednesday 7 December, 2016
Earlier, hundreds of people attended a protest outside Leinster House calling for action on the drug.
Share912
# cystic-fibrosis - Thursday 1 December, 2016
The health minister said he wants “further engagement” between Vertex and the HSE.
Share453
# cystic-fibrosis - Tuesday 29 November, 2016
The Health minister wants to team up with England, Scotland, Canada and Australia.
Share292
# cystic-fibrosis - Monday 28 November, 2016
News broke last night on Twitter that the Government have rejected a drug – Orkambi – that could stop my son’s pain, suffering and lengthen his life, writes Elmarie Tipper.
Share1125
It was reported yesterday that the HSE would not be financing the drug.
Share356
# cystic-fibrosis - Sunday 27 November, 2016
Simon Harris has said he has not yet received a decision from the HSE regarding Orkambi.
Share493
# cystic-fibrosis - Monday 14 November, 2016
The minister says he is exploring options with other EU countries to bring the cost down.
Share366
# cystic-fibrosis - Monday 31 October, 2016
The drug, which costs about €160,000 per patient per year, is giving some people with cystic fibrosis a new lease of life.
Share225
# cystic-fibrosis - Sunday 18 September, 2016
Luke Doherty has had cystic fibrosis all his life. Now he has a new set of lungs and wants to share his story.
Share494
# cystic-fibrosis - Saturday 4 June, 2016
TheJournal.ie talks to three people with cystic fibrosis about what has been a difficult week.
Share745
# cystic-fibrosis - Wednesday 1 June, 2016
Meanwhile, the cancer drug Pembrolizumab has been approved for reimbursement by the HSE.
Share410
# cystic-fibrosis - Thursday 7 April, 2016
Kelsey Nolan has stepped into a campaigning role early in life.
Share1136
# cystic-fibrosis - Friday 12 February, 2016
It took almost a year to organise his top secret mission.
Share52
# cystic-fibrosis - Wednesday 28 October, 2015
Kieran McCarthy chats to The42 about his impressive achievement on Monday.
Share742
# cystic-fibrosis - Saturday 5 September, 2015
Alfie’s Army are heading for the skies to raise money for their little man.
Share149
Mainly cloudy and mild with a shower
Max: 16 °C
Min: 9 °C
Mostly cloudy and mild
Max: 16 °C
Min: 8 °C
