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# Cystic Fibrosis

13th June 2024
Cystic fibrosis ‘miracle’ drugs priced higher for poorer EU countries
Investigate Europe reveals how people with cystic fibrosis across the continent have been priced out of access to life-saving medications.
Last year
HSE approves use of life-changing Cystic Fibrosis drug for 35 children previously excluded
All time
'Intensive work' ongoing to give 35 children with Cystic Fibrosis access to life-changing drug
Opinion: 'At 27, with no children, cystic fibrosis and now cervical cancer - my world crumbled'
Aoife Rafter
Opinion: 'A new cystic fibrosis drug means I'm the healthiest I've been for 20 years'
Bevin Murphy
Department of Health can't give timeline for rollout of publicly-funded IVF
PPE grant now available for people with cystic fibrosis
Cocooning through Covid-19 with CF has taken focus but I have never felt better
Benat Broderick
Five weeks in lockdown in hospital is tough - and the food makes it worse
Jillian McNulty
Over €300,000 raised for CF Ireland through 65 Roses fundraising efforts
Living with cystic fibrosis in a pandemic is tough, but we have lived this for some time
Patricia Duffy-Barber
Opinion: 'Covid-19 is the world's biggest fear. Welcome to my world.' Diary of a man with Cystic Fibrosis
Trevor O'Sullivan
Opinion: As a Cystic Fibrosis patient, the coronavirus is a major worry for me
Benat Broderick
Record number of patients were hit by dangerous hospital superbug last year
'A most wonderful Christmas present': HSE to reimburse cost of new cystic fibrosis treatment
New approach to treating cystic fibrosis could reduce the need for lung transplants, RCSI study finds
Irish couple facing deportation in Australia because son has cystic fibrosis granted residency
Irish couple facing deportation from Australia because son has cystic fibrosis lose appeal
We need to change the disabled parking logo - so people stop telling me that I'm not disabled when I am
Benat Broderick
'Thinking of my donor made me really determined to achieve': How a double lung transplant changed this DCU lecturer's life
Opinion: At 12 I started taking Orkambi as a trial drug and it transformed my life
Benat Broderick
'I was studying to be a fitness coach when I needed a double lung transplant'
'If I didn't take part in a clinical trial, I would have died'
Over 2,000 people sign up for organ donor cards in light of Orla Tinsley documentary
'Nothing short of a miracle': Irish CF campaigner on recovery after double lung transplant
'She was just so ill, it was horrible to see my child like that'
'I spend three hours a day on a nebuliser, but exercise helps my mental health'
'We're terrified': Parents of sick children to hold vigil outside Crumlin hospital over trolley crisis
'We've come so far': Orkambi campaigners hail next step as children can now get 'life-changing' drug
'I have shiny new lungs' -Irish Cystic Fibrosis activist gets double lung transplant
Christmas without loved ones: 'Try to keep it simple. The first year is very, very difficult'
Irish Cystic Fibrosis activist Orla Tinsley recovering in hospital after double lung transplant
Seriously ill Irish Cystic Fibrosis activist makes donor card appeal from intensive care
'In danger of snatching defeat from the jaws of victory': How tension built ahead of Orkambi deal
Campaign to raise money for Orla Tinsley's lung transplant care hits target
'Undue fear and confusion': Read the emails Vertex sent to Department of Health about Orkambi
'No parent wants to see their child go before them': Living day-to-day with cystic fibrosis
'We are so, so happy that it's finally here': Cystic fibrosis patients celebrate deal on Orkambi
'Life changing' cystic fibrosis drug Orkambi will be available from next month
'After the transplant, I looked in the mirror and my eyes weren’t yellow anymore, they were white'