Your contributions will help us continue to deliver the stories that are important to you
Tuesday 22 September 2020
The grant of €100 per applicant is available from Cystic Fibrosis Ireland.
Benat Broderick, who has cystic fibrosis, has been cocooning at home and says he’s grateful for the time to focus on his health and wellbeing.
A patient with cystic fibrosis, for whom nutrition is key to health, shares her hospital food experience.
The 65 Roses fundraising campaign would usually see community-hosted events take place across the country.
Patricia Duffy-Barber, Chairperson of Cystic Fibrosis Ireland says people CF are nervous, but they’re doing their best to get through.
Trevor O’Sullivan documents his challenges as a person with CF during the Covid-19 crisis.
Benat Broderick writes about his concerns regarding Covid-19.
Strict new Covid-19 measures are now in effect in the capital – here’s what they mean for you.
Over 660 new patients contracted the antibiotic-resistant bowel bug CPE from January to November – with 13 outbreaks currently across the country.
About 1,200 children and adults have Cystic Fibrosis in Ireland.
Cystic fibrosis is a genetic disease that affects around 1,300 children and adults in Ireland.
The couple appealed the decision to refuse them residency which prompted intervention from a government minister.
The couple are holding out hope that Australia’s Immigration Minister will intervene.
‘I find these interventions by members of the public quite insulting and extremely embarrassing,’ writes cystic fibrosis advocate, Benat Broderick, 15.
Greg Foley had to get a double lung transplant after complications from his Cystic Fibrosis.
It was scary starting a drug trial for my cystic fibrosis. We didn’t know how I would react but thankfully my breathing and energy levels improved, writes Benat Broderick (15).
Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.
Patients in Ireland are being encouraged to ask their doctors about clinical trials.
Tinsley was on the lung transplant waiting list in the US for nine months.
Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.
Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.
Ireland has more cases of cystic fibrosis per head of population than any other country.
One mother spoke to TheJournal.ie about the battle her child with Cystic Fibrosis has faced.
Children between the ages of six and 11 will now be able to access the drug in Ireland after yesterday’s announcement.
The journalist and Cystic Fibrosis activist has long campaigned for more awareness about the condition.
Christmas can be a tough time for those who have lost a loved one.
Tinsley spent the last number of days on life support in a New York hospital.
Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.
HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.
A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.
A deal on the cystic fibrosis drug was finally reached last month.
Cystic fibrosis can be a life-changing condition for entire families.
Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.
Simon Harris made the announcement today in the Dáil.
Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.
Helen Taylor died while waiting for a double lung transplant in 2014.
Health Minister Simon Harris said that he wants a good deal for the taxpayer and, most importantly, for patients.
Orkambi is estimated to cost €159,000 per patient.
The government is making a last-ditch attempt to settle a better price for Orkambi.
The drugs are currently too expensive for the HSE to make available to patients.
Earlier, hundreds of people attended a protest outside Leinster House calling for action on the drug.
IT’S A QUESTION that has been asked throughout the pandemic, but which has been raised again recently after the Oliver Bond Street party – would you call the Gardaí on your neighbours if you saw they broke Covid-19 restrictions on mass gatherings?
In the UK, junior minister for policing Kit Malthouse suggested that people should report their neighbours to the police if they’re concerned about gatherings that break the rules.
At the moment, Dublin is at Level Three which means that you can have visitors from one other household to your home or garden; while the rest of the country is at Level Two, which means you can have six visitors from up to three households to your home or garden.
So we’re asking you: Would you call the Gardaí if you saw your neighbours break Covid-19 restrictions on gatherings?
Poll Results:
Share your story: voices@thejournal.ie
Cloudy with a few showers
Max: 17 °C
Min: 6 °C
A shower in the morning; partly sunny
Max: 12 °C
Min: 7 °C
Cool with rain at times
Max: 10 °C
Min: 5 °C
