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Fionn Hamill is a 12-year-old boy who has Asperger’s Syndrome. Fionn says that he understands the condition he has and that he is just “wired differently”. This is why he says he wants to be an advocate for autism, so he can help the world understand how it looks through his eyes. Here he explains why he likes to be different…
When I was really young I didn’t understand other children and I hated big crowds like family events or football matches. Mum explained to me that I was wired differently, that it wasn’t a bad thing. She said that I could just do things differently, but I would still get everything done. And she told me that what I had was called Asperger’s.
I learned to enjoy my Asperger’s. When people call ASD an autistic spectrum disorder or a disability, I don’t like it . It doesn’t make me any less capable to do anything. Asperger’s lets me look at things from a totally different perspective – I can think outside the box. It makes the world kind of complicated and you have to keep figuring other people out.
When people say smile, I don’t quite get them. I didn’t used to get sarcasm and I used to have to question when I heard it, like “was that it?” When teachers tell me to answer the question on the board – and there is no question mark – I wouldn’t understand. Sometimes teachers need to explain more to me than they do usually. Sometimes when people say something and they mean something else, that’s confusing.
Some things I don’t get
It really confuses me if someone shouts at me – I used to think that meant that they hated me. But now I realise it’s just that they want me to do it a bit better at that time. I get confused when a class gets a punishment because I think I am a good child and if I wasn’t doing the wrong thing, why should I get punished?
I don’t get racism. I would never be racist but I don’t understand why you can’t say what colour somebody’s skin is, the way you can with their eyes. Another thing I find confusing is emotions. I made up a word “emotious” and I use it to describe when lots of different emotions are all stirred in together.
For instance, if I am watching something like Les Miserables, I need to be able to chat with mum to tell the emotions apart. I often have to be careful about what I say. Before I say something I often say “no offence” in case I do offend someone. When I was little I never used to get jokes, but now I have a good sense of humour – I love sitcoms like Father Ted, Miranda, Spongebob and Mrs Brown’s Boys (but it can be rude).
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Things I don’t like
People with Asperger’s are very sensitive with all their senses. I call it “sensatious” when there is a really strong sensation. Certain things can bother me, like I used to hate sound of the crowd roaring at a football game so I would cover my ears and scream. My parents kept bringing me and now I don’t notice the noise and I roar too! I also hate the feel of baked beans. If there is one in my food it makes me actually get sick. I don’t like the feel of some clothes fabrics. I always like cottony ones and I’m really sensitive to smells. I can’t deal with the smell of anything agricultural or anything to do with a farm.
There are lots of other things that can bother me like the smell of cigarettes, babies’ drool (I don’t really like babies until they are a bit more mature and have dried up).
I often can’t sit still, so at home I’m allowed play a ball and hit it against a wall to work off steam. In bad weather, I like to spin around like mad a few times which I call helicoptering.
Settles me down
When I feel nervous, ‘emotious”‘ sad or a bit hyper I need, what I call a ‘squish’. A squish means Mum gets me in really tight hug and squeezes – it’s a bit like Temple Grandin’s hug-machine. It really settles me down. In school when I need a squish I do things like roll up my sleeves or tighten my shoelaces.
I find it difficult trust people or new things. I know my autism makes me do whacky things and we get a laugh out of them, but I can do a normal things too. Overall, I like being different. My friends like me just the way I am too. I like the world through Asperger’s eyes.
When you get older, you can see that everybody is different somehow, that’s what makes the world interesting. I keep on learning at every new stage of my life. My Mum says she can read me like a book, and I say I use her like an encyclopaedia.
It works out good.
Fionn Hamill is 12-years-old and writes a blog called autisticandproud.
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David Byrne from Talking Heads has/is asbergers and he is easily the most innovative modern composer performer this century. I’ve met him, a couple of beers after outrageous gig, nothing is lost….lots gained. People are all sorts of different.
There is no them and us, we are all the same. We’re just ‘wired a little different’. Well done Fionn. When autistic people are accepted as a normal part of our society in the future, it will be because of the efforts of people like you. I hadn’t heard of your blog before today but I will be becoming an avid reader. I think through you we can make giant leaps in our understanding of autism.(I have a six year old daughter with autism and she is definitely wired differently, and I wouldn’t have it any other way).
Hi John, re O.T. Advance Therapy Systems Dundalk – just opened also in Santry. Brilliant place. (You had mentioned difficulties re sourcing O.T. on another forum).
i think Fionn’s insight is that we are all different in some way!
Be it brown eyes, a curved finger or Aspergers.
He tells people about it, and LOVES how it makes him.
but the wisdom is IN that realisation that difference is what makes the world interesting :)
Helen
(his mum)
Fionn, that was such a super article! For a boy who said he didn’t always understand emotions, you have lessons to offer those of us not gifted with your perspective on the world. I think the world would be a better place if everyone understood when they needed a squish or felt a bit emotious (I hope I’ve used this right!). You’ve opened my eyes a lot – long may you continue sharing your story.
He has learned emotions, empathy and a very dry sense of humour…and best of all,, how to laugh at himself :)
please make sure to follow blog!
autisticandproud.wordpress.com
I was diagnosed last year at the age of 28 and suddenly everything made sense. I’m still working through different stratagies and skills, but it has been a huge boon knowing.
I have found loads of blogs and articles on line to help me.
It even got me a job…….
Good article, keep it up and you will have a bright future.
I have Aspergers as well. The thing I find difficult is making friends. I send people I dont know friends requests and the reply I get is “Do I Know you?”. I tell them I”m trying to make friends and they couldnt be bothered. It can be frustrating sometimes. They think I’m some kind of weirdo. Which I’m not.
Facebook is not the place to make real friends. There should be groups in your area that will help you overcome your problem. We all need friends and I am sure there are people out there who want to become yours, but you have got to stop believing that you are different. You are not. Good luck.
Brilliant. Too easy for us to think that there is something ‘wrong’ with people who don’t fit into the mainstream idea of what is ‘normal’, about time we started to expand our concept of what normal is. Children and adults with disabilities are just different, there is nothing wrong with them. Lets stop limiting people with labels and let them have the confidence to be who they are. I hate using the word ‘let’ as it presumes superiority, I have no right to contain a person within ‘normal’ parameters.
Its a great insight to others with Aspergers, people working with Aspergers…and to us as his parents too!
please make sure to follow blog!
autisticandproud.wordpress.com
Love this! Couldn’t have come at a better time! We are going through the assessment process with my 6 1/2 year old. Thanks, Fionn – you’re wonderful in all the many ways you are unique! I’ll be an avid follower of your blog! Love to your mom too – the two of you are an inspiration to those of us starting out new with this.
am reallydelighted.
I had friends who sympathised with me when we got Fionn’s diagnosis…as if it were terminal illness..
it makes for life by the scenic route.
but i would NOT change him for the world!
Let your son understand himself early…he will be fine!
Hx
My son has aspergers and his nick name is squishy ! He would often when he was younger ask for a squish. He comments in public sometimes if someone looks different but only because he thinks it fantastic. He ran after a dwarf r little person ( pc?) one day to say ” hey look at you, your the same size as me and you’re big, how fantastic !” The guy thought it was hilarious but his companion was disgusted with the attention and shot me daggers look. Their honesty can be refreshing they just don’t play the twisted social game.
Such a great article. Informative and funny and really explains his feelings. I work with children and it really helps to have read this. Love the words “sensatious” and “emotious”… Hope I got them right.
Gillian best put it down to to ease of hitting wrong button alas in my own experience the ignorance of people when faced with autism is quite disturbing
As an early years educator who has recently been blessed with the addition of a child who has Aspergers I was struggling as a Carer to help him settle and understand him. This article has been of great value to me and a real interesting read. I will definitely be following the blog :)
i am 60yrs of age and have aspergers, i feel different but it too decades to be diagnosed. i led a long life of quiet despair and now i am very disabled physically. i am glad that Fionn has the awareness that i could have done with at his age, well done on the article, wonderfully put and continue to express yourself as different, you do it well and actually, i too wonder why we cannot say it as it is. I have Asperger – so what?
Really inspiring, fantastic – GO FIONN! I work with children with Various difficulties and will remember this article in future. Will definitely follow the blog too! Thanks Fionn
While I really like this, and give much praise to this wonderful young man. For some Autism is a disability. My son has severe classic autism and struggles with communication, going to the bathroom and basic day to day activities. While I love your attitude, remember there is a wide range on the spectrum and for some it means a huge struggle to achieve any level of independence.
Sounds like a lovely place you are in Fionn, us “normal ones” could learn a lot from you. Great article. PS it’s not a question without a ?, it’s a statement.
Fantastic article! Going through the assessment process with my 5 year old son at the moment, and it’s given me more insight than many of the “factual” articles on the web! Well done Fionn and Helen :)
Tracey, the theoretical experts will diagnose your son.
The real experts will be you and himself who will constantly be looking for ways to work though school, to help teachers help him learn, to have the interest to make him your wee work of art…ongoing.
(as you would for ANY of your children!)
Helen
As one of the elderly ladies I work with is fond of saying “it takes all sorts to make a world”. I for one am glad of this, all the people I have met who had Aspergers have helped me to see things in new ways, as no doubt Fionn will for all those lucky enough to get to know him.
Someone said it here before but it shouldn’t be called a disability, because it’s different ability – something to be embraced..
My brother is 13 and is an Aspie and he is loving,caring and has a wicked sense of humour I loved reading this and laughed out loud at some parts as it seemed so much like my brother:-)
Articles like these are why I read the journal. It is refreshing to report on a topic like this. I have always found that people who are not open to diversity are the ones that actually lose out in the end. Difference brings variety and learning. When reading the article I couldn’t believe it was written by a 12 year old. Well done Fionn and his parents, keep up the good work!
Thankyou Alison.
He puts it on paper as he says it.
we have always talked openly and need to…about how life is, and we discuss options…
he is so self aware now.
so far so happy…
H
This article was fantastic. I work in the special needs area with children and it’s articles like these that should be published in college books. I also volunteer with a group called surf2heal, we bring children on all levels of the spectrum surfing, it’s fully volunteer run with no funding and I can genuinely say we get as much, if not more, out of it than the kids. These kids are amazing, if the world could be as honest and open as children with aspergers and autism are-it would be a much better place. Thank you!!
i agree with you!.
The only real experts on conditions like asperger’s are the people who live with it.
and i suppose that was an aim in our starting the blog, as so many depend on information being handed over…but it isn’t . you know what your child needs, and as a mum, you try to help him get there.
H
Very intelligent article ! I was diagnosed in August last year also. I have been unknowingly living with aspergers for 33 years. I don’t know if many people know but the likes of Bill Gates, Bob Dylan, Abraham Lincoln, Robin Williams among many others were thought to have aspergers too and look what they achieved in their lifetime. People with aspergers may be different but in their own unique way. I’m beginning to look on my aspergers as a gift which I will use to my benefit. It certainly makes me be more creative. Yes we have to work harder at social interaction but having a diagnosis is the best thing that happened to me as it put things in perspective and helped me to move on with my life. The future is looking bright in my eyes. It’s great that Fionn has been diagnosed so early in his young life as he can take full advantage of his gift from an early age. Well done
it is a huge advantage for Fionn to have his label to explain difficulties that you would have had to work your way through.
It is a great strength understanding why things do challenge you, and a step on the way to challenging your instinctive easy opt out.
I have so much admiration for the mutitude of people – MANY geniuses who used and focused their strengths to make the world a better place….with NO explanation of how or why they found crowds difficult, liked space etc.
I hope fionn helps parents of new diagnosed children to see, it is NOT a terminal condition , but an outside the box view on life!
Helen
Asberger,s and people who have it can have a destructive attitude in dealing with reality and can cause real problems to people,s lives as they grow older, they don’t mean to do it but they are black and white and are have nonsense of humour
It’s people like you that have a problem not these gifted beautiful young people, the world would be a better place for us all if we accepted people for who they are not stereotyped, Autism has only really been recognised in society the last few years and for those who suffered and struggled for so many years can now accept that their just a little more quirky and may have a few more obstacles to get around but looking at my nephew who has autism I’m telling he could teach us a thing or two about life, he is fantastic young child who is so talented and gifted and takes everyone at face value.
FlipFlop, while you’re somewhat accurate in your statement ( the destructive and reality part), I would argue that it’s not due to Aspergers – it’s due to not understanding what Aspergers actually is. Most often the people who are destructive (both in their own and other people’s lives) and have difficulty with reality (you say difficulty with reality, I say coping with knowing you’re different but not knowing what the difference is) are those who remain undiagnosed until much later in life, and grow up – as has been described here much better than I’ll ever manage – just knowing something is different but not being able to put words on it.
As regards the sense of humour – I’ve yet to meet a person with identified Aspergers who doesn’t have a very good (usually dry) sense of humour!
If black and white is how Fionn sees the world, I’ll have no problem seeing things in black and white – give me black and white any day.
A wonderful column, insightful, informative, useful on so many levels, for those with and without Aspergers – an uplifting view of the world – just awe inspiring — well done to Fionn and Co!
Well done young man – a wonderful article! My brother who is in his 20′s also has Aspergers and had many similar feelings growing up. You are very talented and will excel no matter what you do in life. The very best of luck to you xx
Thanks Noreen.
He is finding his strengths and has had so much support on his blog, he is determined to try to keep explaining life from his view.
Helen
(his mum)
I’ve worked with various young people labeled with various autistic spectrums over the years. Each of them educated me in different ways. That was never an expectation but definately a nice gift. Years later I hope they are doing well and still teaching :)
thats exactly what asperger’s does.
it brings out the creative thinker in you to work with them – to see ways of helping them process.
and each one is so unique…so we never remain stuck to one way of thinking with Fionn
Helen
Wow.
It’s wonderful to hear about the specific likes and dislikes of one individual human being on planet earth.
As for me:
I love the song “Clowne Towne” by Xiu Xiu but the song “See You” by The History of Apple Pie doesn’t do much for me.
I like men between the age of 50 and 60 wearing beige slacks and glasses with receding hairlines and hairy arms.
Women between the age of 35 and 42 don’t really interest me.
I don’t really like crowds or loud music in public places.
lots of uneducated fools on this thread some people cant jus take an article and show positive support all the red thumbs are disgracefull and show that we live in a society where people can run down a good story jus for the sake of it
I was just scrolling down through this mornings posts and decided to start with yours… Wow! Now I’m awash with positive feelings and can honestly say to myself “maybe there is hope afterall!?!” I sincerely hope that those that should read your post, do read it: I certainly needed to, and I’m glad I did – I’d just like to wish you the very best in the future and thank you so much!
I’m now going to log-out – the sun is shining outside, and I want to make the moment last…
Beautiful boy and lovely mum, my 7yr old has Asperger’s and I wouldn’t change him for t world! Only problem I have is other people’s ignorance!! Mostly due to lack of awareness
when Fionn was little , we used to say”I wouldn’t change you for the world, but i would change the world to fit you!”
and you do.
you educate the people he meets – they need to change- not your child.
Helen
Thankyou.
He explains just how he sees it.
His “label” has merely been an explanation, and a means of setting challenges…with the end product hopefully an independent life.
We have benefited hugely through having Fionn just as he is :)
Helen
Hi Fionn
I am a mum of 4 children and 2 of them have aspergers. Thank you for your article I really enjoyed it and in my house we all enjoy a squish :)
Catherine
am afraid he has brought out the creative thinker in me…
i can see routes for him – but he is the one who always accepts and rises to the challenges, Fiona.
Helen
What a beautiful article written by a beautiful boy. I love the simplicity of his thinking, we all have to figure out ways of dealing with different people and situations! Also well done to a great Mum!
Thanks James.
and very well answered.
Asperger’s diagnosis is a starting point, with a lot of social learning ahead…not a prescription for life long narrow minded, no personality…its that extra thing where you have to learn “people” …it becomes an insight.
Helen
To Fionn , well done on a brilliant article , I will definitely be following your blog along with my 10year old son who also has Aspergers and is very similar to you. And Helen well done to you too on your support and understanding o how awesome your son is and congratulations on having such a fabulous son whenever anyone has sympathised with me since my sons diagnosis at 3 I simply say no u should congratulate me because my son is an awesome gift and I am truly blessed to have him in my life to teach me his honest , loving , insightful unbiased view of the world.
Well done to you both xxxx
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