#Open journalism No news is bad news

Your contributions will help us continue to deliver the stories that are important to you

Support The Journal
Dublin: 8°C Tuesday 15 June 2021

The Ice Bucket Challenge: Where does the money go?

The Motor Neurone Disease charity lets us know…

Image: A certain TheJournal.ie reporter taking the challenge.

YOU’VE PROBABLY ALREADY completed your Ice Bucket Challenge and made a donation to the Irish Motor Neurone Disease Association. If not, you’ve definitely been nominated by now. (Get to it!)

The charity expects to pass the €1 million fundraising mark today from the unprecedented success of the initiative, more than half its entire fundraising efforts last year.

Wondering where that money goes?

Last year, the IMNDA spent a total of €1,591,252. Of that, over €1 million was spent on services with a further €175,000 on dedicated nursing services.

The organisation provides people with Motor Neurone Disease with specialised aids and equipment, as well as home help and respite services. It also employs two MND nurse specialists who visit clients on a daily basis. There is no statutory funding for those nursing posts.

Governance and communications made up 5% of the spend at almost €80,000. The cost of fundraising came in at about €175,000 and, finally, 3% or €48,000 was dedicated to research.


In 2013, IMNDA raised €1.6 million in gross income. About 17% of that came from the HSE and is used to pay for administrative salaries.

Last year, 12% of overall funds raised went towards funding salaries and pension costs. The charity employs nine people, with just one paid in the highest category of between €60,000 and €70,000 per year.

Another two are paid between €50,000 and €60,000.

The remaining seven are paid between €10,000 and €50,000.

On its website, and in light of last year’s charities scandals, the IMNDA says it hopes to “have given you an open, honest and fair reflection of how our funds are spent”.

In the US, where the craze began, the challenge has raised more than $79.7 million for Motor Neurone Disease.

More: How this horrifying Ice Bucket Challenge fail became a viral death hoax

Poll: Have you done the Ice Bucket Challenge?

Read next: