# cf - Thursday 8 April, 2021
# 65 Roses Day
# 65 Roses Day
Ahead of 65 Roses Day tomorrow, med student Bevin Murphy outlines the tough year she’s had as a person with CF , and how a new drug has changed everything.
# cf - Sunday 6 January, 2019
# Cystic Fibrosis
# Cystic Fibrosis
Luke Doherty was added to the transplant waiting list when one of his lungs collapsed.
# cf - Saturday 14 April, 2018
# Orla Tinsley
# Orla Tinsley
Orla Tinsley told RTÉ’s Six One News that she feels like a “new woman”.
# cf - Friday 13 April, 2018
# 65 Roses Day
# 65 Roses Day
Darcy Grainger is one of about 1,300 people in Ireland who have cystic fibrosis.
# cf - Sunday 25 February, 2018
# Cystic Fibrosis
# Cystic Fibrosis
Ireland has more cases of cystic fibrosis per head of population than any other country.
# cf - Wednesday 20 December, 2017
# Orla Tinsley
# Orla Tinsley
Orla Tinsley has been instrumental in raising awareness of gaps in CF services over the years.
# cf - Saturday 26 August, 2017
# Cystic Fibrosis
# Cystic Fibrosis
HSE and Vertex employees were working long hours behind the scenes to secure the historic agreement.
# cf - Monday 24 July, 2017
# Cystic Fibrosis
# Cystic Fibrosis
A fundraiser has been set up to help Irish journalist Orla Tinsley raise money for a lung transplant aftercare.
# cf - Sunday 7 May, 2017
# Cystic Fibrosis
# Cystic Fibrosis
A deal on the cystic fibrosis drug was finally reached last month.
# cf - Thursday 13 April, 2017
# 65 Roses Day
# 65 Roses Day
Cystic fibrosis can be a life-changing condition for entire families.
# cf - Wednesday 12 April, 2017
# End Of A Long Road
# End Of A Long Road
Orkambi – as well as the drug Kalydeco – will now be available for CF sufferers from 1 May.
# cf - Tuesday 11 April, 2017
# Deal Reached
# Deal Reached
Simon Harris made the announcement today in the Dáil.
# cf - Monday 3 April, 2017
# Organ Donation
# Organ Donation
Shauna Morrissey has cystic fibrosis and is campaigning for an opt-out organ donation system.
# cf - Sunday 2 April, 2017
# Organ Donation
# Organ Donation
Helen Taylor died while waiting for a double lung transplant in 2014.
# cf - Wednesday 7 December, 2016
# Cystic Fibrosis
# Cystic Fibrosis
Earlier, hundreds of people attended a protest outside Leinster House calling for action on the drug.
# cf - Thursday 1 December, 2016
# Cystic Fibrosis
# Cystic Fibrosis
The health minister said he wants “further engagement” between Vertex and the HSE.
# cf - Tuesday 29 November, 2016
# Orkambi
# Orkambi
The Health minister wants to team up with England, Scotland, Canada and Australia.
# cf - Monday 28 November, 2016
# Cystic Fibrosis
# Cystic Fibrosis
News broke last night on Twitter that the Government have rejected a drug – Orkambi – that could stop my son’s pain, suffering and lengthen his life, writes Elmarie Tipper.
# Orkambi
# Orkambi
It was reported yesterday that the HSE would not be financing the drug.
# cf - Sunday 27 November, 2016
# Orkambi
# Orkambi
Simon Harris has said he has not yet received a decision from the HSE regarding Orkambi.
# cf - Monday 31 October, 2016
# Cystic Fibrosis
# Cystic Fibrosis
The drug, which costs about €160,000 per patient per year, is giving some people with cystic fibrosis a new lease of life.
# cf - Wednesday 1 June, 2016
# Not Cost-effective
# Not Cost-effective
Meanwhile, the cancer drug Pembrolizumab has been approved for reimbursement by the HSE.
# cf - Monday 20 April, 2015
# Staffing
# Staffing
The state-of-the-art new cystic fibrosis unit in University Hospital Limerick was built thanks to charitable fundraising efforts.
# cf - Monday 22 December, 2014
# GOOD DEED
From The42
# GOOD DEED
Nine-year old Cody Nolan will be a guest in the striker’s private box at the Aviva.
# cf - Monday 1 December, 2014
# Rest In Peace
# Rest In Peace
“She wanted to live with every fibre of her being.”
# cf - Sunday 23 November, 2014
# Cystic Fibrosis
# Cystic Fibrosis
Helen Taylor, a Cystic Fibrosis sufferer, has been on the organ transplant waiting list for almost a year.
# cf - Sunday 21 September, 2014
# Awareness
# Awareness
Most people are unable to spot the warning signs of the disease.
# cf - Wednesday 11 June, 2014
# Fertility
# Fertility
In the past, people with cystic fibrosis typically died in childhood. But now that we have longer lifespans we are often faced with a new problem: infertility.
# cf - Monday 24 March, 2014
# 65 Roses
# 65 Roses
TheJournal.ie speaks to mum of two-year-old Mason and 20-year-old student Amy about their day-to-day experiences with the chronic illness.
# cf - Sunday 26 January, 2014
# Social Network
# Social Network
For one Kerry-born woman, it was just a case of having the right friend.
# cf - Friday 1 February, 2013
# Kalydeco
# Kalydeco
The decision was announced today by Minister James Reilly after an agreement was reached with the HSE and the manufacturers of the drug.
# cf - Monday 21 January, 2013
# Cystic Fibrosis
# Cystic Fibrosis
Irish health authorities will negotiate the price of a “groundbreaking” new treatment for cystic fibrosis, which would currently cost the State more than €28 million annually.
# cf - Tuesday 18 December, 2012
# Cystic Fibrosis
# Cystic Fibrosis
Two in-patient rooms will be held in reserve for emergency CF admissions – but patients say the arrangement falls short.
# cf - Thursday 24 May, 2012
# Cystic Fibrosis
# Cystic Fibrosis
A new study from the Royal College of Surgeons in Ireland shows that the female hormone oestrogen has a role to play in this.
# cf - Tuesday 8 November, 2011
# Cystic Fibrosis
# Cystic Fibrosis
The ‘Podhaler’ is a wireless inhaler that reduces the time needed to receive antibiotic treatment from almost an hour a day to just five or six minutes.
# cf - Tuesday 4 October, 2011
# Cystic Fibrosis
# Cystic Fibrosis
President Mary McAleese will be at Our Lady’s Children’s Hospital today to open a state-of-the-art, four-bed ward for patients with Cystic Fibrosis.
# cf - Monday 24 January, 2011
# CF
# CF
The HSE has announced that it plans to introduce a newborn screening programme for cystic fibrosis.
# cf - Thursday 14 October, 2010
# Cystic Fibrosis
# Cystic Fibrosis
St Vincent’s Hopsital says it will finalise the agreement to build its special unit in the next 24 hours.
# cf - Wednesday 13 October, 2010
# Cystic Fibrosis
# Cystic Fibrosis
Cystic Fibrosis sufferers could see a specialised unit open in 18 months.
Rather cloudy with a brief shower or two
Max: 17 °C
Min: 10 °C
Clouds and breaks of sun
Max: 18 °C
Min: 10 °C
